PatientsInside @PatientsInside
PatientsInside is a patient insight, patient engagement initiative created to enhance the quality of care through communications and support. New York, USA Joined November 2017-
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@ideapharma Congrats to you both. She deserves everything this anniversary merits. 😉
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@RobertFWright @brentlsaunders @elonmusk @TuckerCarlson It is a spend. An allocation from a budget or real money that goes from a company to an advertising medium via intermediaries that are usually media agencies. It is real Money.
@JMaraganore @VivekGRamaswamy One without the other helps neither. He’s achieved a great deal. That at least should be acknowledged, it goes without saying, as his financial acumen.
Should have included #trisomy in this. Thanks.
Who follows @Trisomy_SOFT and @soft_uk ? Interested to hear why. Thanks
Who follows @Trisomy_SOFT and @soft_uk ? Interested to hear why. Thanks
Pediatrician friend told us about the increased number of #rsv2022 infections he is seeing. Anyone else aware of uptick? NE USA BTW.
PatientsInside retweeted
#TardiveDyskinesia (TD) means having uncontrollable movements in your body. These may appear to be rapid and jerky or slow and writhing. This Mental Illness Awareness Week (#MIAW), take a moment to learn how to recognize the condition: bit.ly/2oLBKrD
PatientsInside retweeted
#AACRcrc22 @CCAlliance Advocacy Organizations as Critical Players in the Research Ecosystem: A Case Study in the Value and Use of Real World Evidence. #NationofAllies #Never2Young
Sajid Javid orders NHS to stop dropping 'women' from its advice pages Hallelujah mol.im/a/10925093
PatientsInside retweeted
🧬Thursday 16th June is Rare Chromosome Disorder Awareness Day 🧬 My son Nathan has 4q deletion, to be specific 4q25q27 - Diagnosed at 8 months. Nathan is now a handsome 24yr young man @Unique_charity 💙💛 ❤️ #rarechromo #4qdeletion rarechromo.org/rarechromoday/
Interested to see Patient Reported Outcomes (PROs) mentioned more often these days. Who reads them? How do you use them? Appreciate any insights: thanks #PatientInsights #PatientVoice
Better sooner than later because what @tim_fargo is saying comes true every night when we go to bed and tomorrow it may or may not be there. #CarpeDiem
@mmameg Meg Tks for sharing. This is an inequity of sorts that made access to care difficult esp during lockdown when many did telehealth. Yet another example of SDH in action.
PatientsInside retweeted
.@bliden has integrated #PublicPolicy, #crisis management & #publicrelations practices for 3 decades to provide strategic solutions to unique challenges. He enjoys sharing his experience & will be speaking with you @ #PEOF 2022 on May 24. Register now 👉bit.ly/3MISt4l
PatientsInside retweeted
This is a beautiful initiative. Thank you @SandsUK
When a baby dies before 24 weeks gestation, you may want to make a record of their birth. We have a range of certificates available to download for free from our shop 👇 sands.org.uk/certificates #SandsHereToSupport #BabyLoss #PregnancyLoss
@AAFANational Understand SDH etc but surprised to see ‘structural racism’ as an underlying cause of asthma. Environmental triggers have been well understood for decades but this reaches to a new level.
@ideapharma @bakadesuyo Always thought the former but perhaps ‘indeed’ is derived from or a contraction of ‘in deed’. Got me thinking now too.
@SallySWong @hmkyale @AHAScience @UmeshKhotMD @TYWangMD @emilycob @rohan_khera @ErinMichos @ManlaYosef @mad_sters @Lisa_Jackson_MD @bnallamo Congratulations all at #QCOR22 We think we've been in that conference room ;-)
さとう @mitanisets34732
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Catherine Stratton, M... @cathsmstratton
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MDSurvivor @MdSsurvivor
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Annette Fournier, aut... @AnnetteFournie8
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Tracy Dixon-Salazar @TracyDixonSalaz
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carlos Roman @crberoman
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Sara Jane Demy @demy_sara
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Demand Diversity @DemandDivers1ty
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MJH Life Sciences® @MJHLifeSciences
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JeffD @PatientPower2
89 Followers 83 Following Life science marketing researcher and committed advocate for Israel and the Jewish people
Roberta A Albany @raalbany
2K Followers 2K Following Ten Year Breast Cancer Survivor (ER+) My passion is bridging the disparities gap in the Black/African American community with trusted resources and education.
Ella Balasa @ellabalasa1
623 Followers 1K Following #patientadvocate | speaker | published writer | living with #cysticfibrosis. Antibiotic resistance and patient co-creation in healthcare are my passions
Thelma Perry Brown @tperrybrown
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Nicola Decker @nicola_decker
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Gill Murphy 💙#Forg... @GillyMurphus
693 Followers 1K Following Mum, wife, blood cancer patient, pt research representative, ex-biochemist (Dr) & research manager, Blood Cancer UK Ambassador, Anthony Nolan supporter, LFC fan
Moses Wilson @MoeWilsonStory
650 Followers 4K Following Dedicated to supporting all people in need. Lost wife, mother and sister to #breastcancer. #donor #sponsor #benefactor #charity #grant #researchgrant
Arachnoiditis99 @arachnoiditis99
62 Followers 187 Following N the business of helping people not hurting them! 😇💫👠 The people's voice 🌃🍷🥀 Humans Rights Activities 🖤🦓🌹🌻 #GOTEAM #CPATF #iPainLiving 🌊🌊🌊🌊🌊
HollyT @HollysBesos
266 Followers 1K Following Happily Imperfect #2XCancerSurvivor & #Thriver🤞🏾 #TNBC🏁 #BRCA1 #CarpeDiem ♏️✨#Foodie #LoveIsLove💜#HRProfessional #CoffeeAddict ☕️
MCS~FUND Meesha Chane... @FundMcs
213 Followers 742 Following MCS ~ FUND mission to generate unrestricted funds for #SickleCellAnemia affected individuals. Through Supportive Services & Advocacy serving people with disease
Pain Pioneer @PainPioneer
226 Followers 288 Following Living with #MEcfs #fibromyalgia #migraine #trigeminalneuralgia #PTSD #CKD #hydrocephalus #arachnoidcyst - Committed to learning, science & research.
Mary Bates Brachaniec... @brachaniec_mary
1K Followers 2K Following Past Member, HSO LTC Services National Standard Tech. Committee, Care Partner- U. of Regina Dementia & Pain Team, & CIHR CPN Patient Partner.
Anne Marie Mercurio @chemobrainfog
12K Followers 5K Following Patient research advocate. #SWOG PAC co-chair, BreastCancer NED 2007, #Caregiver #Medidata Patient Insights Board FD: https://t.co/SDGi78y43y
Maimah Karmo @Maimah
34K Followers 29K Following CEO @tigerlilycares Contributor @forbes Featured @owntv @oprah @cosmopolitan @essence @todayshow @gma |Love|God|Warrior|Gypsy|Unicorn|Soulpurpose|#followback
chandler crews @chancrews
934 Followers 3K Following patient advocate – #achondroplasia #biotech #pharma #limblengthening #ortho #healthcarepolicy 🏥 founder @thechandlerproj 🦋 #commspro #socialmedia savvy 📱
Angel in DisguiseInc ... @Angeldisguise_
640 Followers 857 Following https://t.co/cDmAOnmrAs Metastatic Breast Cancer, Pesident/Founder of Angel in Disguise Inc. Non Profit Organization, speaker, advocate/ #LiveLifeNow
Sonya like Tanya 산�... @sonyagoins1
6K Followers 5K Following UGC Creator, Breast cancer survivor, Crohn’s warrior. 요즘 공부하는 거는 한국어예요.
Barby Ingle Official @BarbyIngle
25K Followers 25K Following Candidate AZ House LD7 (#AZFirst #MAHA) | Proud wife of @KenRayTaylor | Entrepreneur, Author | Champion of #RareDisease & #ChronicPain | Join #IAm #NERVEmber
CreakyJoints.org @CreakyJoints
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𝐓𝐢𝐟𝐟𝐚�... @TiffanyKairos
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The Light Collective ... @BeLikeLight
995 Followers 697 Following We're a patient-led collective on a mission to advance the rights, interests, and voices of patient communities in health technology.
Enlightening Results ... @GraceCordovano
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Kimberly Ha @pharmaprodigy
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TweeterAlliss @TweeterAlliss
60K Followers 109 Following Channelling the spirit of the late great commentator. Parody.
CURE SYNGAP1 aka SynG... @cureSYNGAP1
11K Followers 1K Following #SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 https://t.co/4UJNF5bKTl https://t.co/pjCrzqlbV7 🎙
Corey Baysden @CoreyBaysden
5K Followers 5K Following #RareDisease mom to Saylor w/ #Syngap1 🧬 Director of Community Activation @cureSYNGAP1 🧠Working 2 find a cure for #epilepsy #autism #hypotonia #nonverbal #ID
PatientOrator @PatientOrator
591 Followers 871 Following Improving patient-provider communication to address health access. #PatientOrator
Kiran Nagaraj @_Kiran_N_
2K Followers 202 Following Cyber security. Cloud engineering. Cryptocurrency. Partner @Deloitte. Curious. Learning. Tweets are my own
Breastcancer.org @Breastcancerorg
21K Followers 871 Following Nonprofit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer and breast health.
The Clinical Trials L... @ClinTrialsLady
161 Followers 494 Following Clinical Research Educator | Science Communicator | Author, A Kids' Guide to Clinical Research
Eric Barker @bakadesuyo
28K Followers 33 Following Over 500K people have subscribed to my free newsletter. Join them and get exclusive content: https://t.co/8CnoS9c55o
Cure SMA @CureSMA
5K Followers 587 Following Funding groundbreaking research for SMA. Determined to find a cure & support our community as the future of SMA is ever-changing.
Spinal Muscular Atrop... @SMA_UK_
3K Followers 818 Following Supporting anyone living in the UK affected by Spinal Muscular Atrophy (SMA). On Twitter to raise awareness of the condition, our activity and related topics
Paul Tunnah @PTunnah
196 Followers 459 Following Healthcare innovator, communicator, digital health enthusiast and family man (not always in that order). No longer active on Twitter / X.
Plain Language Summar... @PlainLangSumm
280 Followers 138 Following Updates about the #OpenAccess #PlainLanguageSummaries initiative at Taylor and Francis.
Catherine Stratton, M... @cathsmstratton
2K Followers 2K Following Epidemiology PhD(c) @UofT; @CIHR_IRSC CGS-D & @fdnPETF Scholar; MPH @Yale; VP & Research Chair @moyamoyafdn #KnowledgeTranslation #RareDisease #Pain #Disability
Maxim Jacobs 🇮🇱... @MaxJacobsCFA
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Cholangiocarcinoma Fo... @curecc
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Richard Smith @Richard56
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Beacon for Rare Disea... @RareBeacon
12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
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Bev Fitzsimons (she/h... @fitzy45
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The Point of Care Fou... @PointofCareFdn
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Julien Moussalli @jmoussalli1
674 Followers 3K Following Focused on bringing the patient (unfiltered) voice to pharma. Co-founder Outch app | ex- @IQVIA_global | #digitalhealth | #ehealth | #patientinsights
Rare Patient Voice @rarepatientvoic
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Tony six wheeler @mobilitycat
3K Followers 3K Following
Dr. Badvice @BadHealthAdvice
10K Followers 87 Following Bad Health Advice, Medical Humor, Random Thoughts. Dr/Dr.
Dr. Ayla MD 🍉 @DrAylaSays
3K Followers 887 Following Physician (pediatrician), progressive, activist, humanist, vaccine advocate. BLM. فلسطين حرة 🇵🇸 Find me on BlueSky.
Derek Thompson @DKThomp
258K Followers 2K Following Sign up for my new newsletter! (Link below) Also: Co-author of Abundance, host of Plain English, and contributing writer at The Atlantic.
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Tracy Dixon-Salazar @TracyDixonSalaz
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Patient’s Right to ... @340BPatients
3K Followers 554 Following The 340B program was formed to help vulnerable patients. Is it delivering on that promise? Patients have a right to know. #340B #PatientsRightToKnow
Beverley Eve @BevEve
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Walgreens @Walgreens
731K Followers 117 Following We champion the health and well-being of every community in America.
CVS Pharmacy @cvspharmacy
313K Followers 16K Following Bringing heart. Prioritizing health. Getting there together.
CVS COVID Vaccine Bot... @NJCVSCovidVax
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NJ-Vaccine-TweetBot @NjVaccineFinder
6K Followers 11 Following Posting open vaccine appointments for New Jersey residents. Turn notifications on for the fastest updates. Not gov affiliated, just trying to help out!
VaccineHelperNJ @VaccineHelperNJ
3K Followers 5 Following Teen helping people receive COVID vaccines in NJ. Follow to know available appointments! (Madison Ryder)
Sara Jane Demy @demy_sara
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Pain Pioneer @PainPioneer
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