Steph- Long COVID disabled @StephhasADHD
covid is NOT over $MomTheZookeeper patreon.com/StephHasADHD Texas, USA Joined May 2016-
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Following119
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Steph- Long COVID disabled retweeted
Join us:
Mark the 4th year of the pandemic, remember the 1.2 million people lost in the U.S., and show solidarity with the millions living with Covid grief and Long Covid. Learn more or RSVP to @MarkedByCovid's virtual #CovidMemorialDay vigil on March 4, 2024. markedbycovid.zoom.us/webinar/regist…
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Steph- Long COVID disabled retweeted
As Long COVID Awareness Day [March 15th] approaches, join #C19LAP in raising #LongCOVIDAwareness and urging #congress to #FundLongCOVID. Check out our #LongCOVIDAD24Toolkit here: longhauler-advocacy.org/longcovidad24 There are *many* opportunities to participate, including urging @potus to discuss #LongCOVID during the #SOTU address, contacting various congressional committees and members of #congress, urging formal recognition of #LongCOVIDAwarenessDay, #lightitupteal events, working with the media, submitting your experiences & messages to the world and medical community, getting #LongCOVIDAD24 T-Shirts & profile pictures, and more! Be sure to follow our daily actions, participate as your spoons permit, and help us share widely! Always use #LongCOVIDAD24 when posting! #LongCOVID demands an immediate response, and therefore, an all-hands-on deck approach. Let’s do this!
@AuthorJFuller I showed my kid, he immediately said “maybe I can do this too”
… sorry you need surgery… This is not ok
@TexasHHSC IN AUGUST: sorry our system is down, we’ll give you an extension, submit the paperwork ASAP TODAY: oh, you submitted that paperwork 2 days late, the extension isn’t guaranteed, the best way for you to get benefits back is to submit a new application…
@TheRealDoctorT @TruthAbout_ME2 1000 from the hospital, but you’ll be billed separately by the physician.
@forestvanslyke It took me a few different therapists before I found one that worked for me. I didn’t go there to unlearn autistic traits, though. I went to process trauma.
@WhatTheADHD @HowtoADHD I don’t. The end.
@emilykmay The audacity.
@dustychipura In the moment it feels overwhelming.
@Lacey4health @dwnwththecistem @dustychipura The audacity. You are dripping with ablist privilege. Just stop.
@Lacey4health @PixieDragon58 @dustychipura It’s a privilege to have the ability to work 100 hours a week.
@elonmusk I mean It’s a latín prefix… but ok. Die mad I guess…
Is it still “lawful good” if your only ‘law’ is ‘harm none/as little as possible’? Or would that be ‘neutral good’?
@CashApp Nah, you might wanna get that looked at $MomTheZookeeper
@ItsEmilyKaty Sometimes I don’t know what I want to change, I just need something to change, and CBT doesn’t always help with that.
@ItsEmilyKaty Making appointments, though, now with virtual appointments it’s been much much better.
Just a reminder that the only people who can romanticize the “good old days” are the ones who survived it.
Katherine Marie @LCRealTalk
14 Followers 172 Following https://t.co/MZCAYaWYg7 [email protected] Nurse practitioner + Mental Health Social Worker navigating #LongCOVID
Rachal Renee Young @RachalReneeYou1
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CleanTheAir @CleanTheAir2024
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יוסי פרס @Yosiperes
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Josh Fox @joshfoxfilm
49K Followers 4K Following Oscar-nominee. Emmy winner. director of GASLAND, THE TRUTH HAS CHANGED, HOW TO LET GO OF THE WORLD,AWAKE. also @joshfoxfilm on Instagram . #banfracking!
Joanne Nash @JoanneC72032255
46 Followers 687 Following
OtherwiseADHD @OtherwiseADHD
113 Followers 1K Following A lighthouse for overloaded brains. Practical ADHD ideas, gentle tools, and real-life tests - after contact with actual life. #ADHD #Neurodiversity
Kendra @SurvivingCFS
12K Followers 8K Following Formerly homeless, now living at a facility |Disabled by #mecfs | Disability rights advocate. | #audhd | Former English teacher just trying to survive. 🏳️🌈
Andrea Duckworth @Andrea_duck100
1 Followers 57 Following
Leo Koesters @LeoKoesters
2K Followers 8K Following Mental Health x Tech — Founder @beyond_you_net | Host @bandl_podcast | Psychology Freelance Lecturer | No medical advice.
BreizhPowerGirl @BreizhPowerGirl
743 Followers 3K Following Bretonne #CovidLong depuis le 13/03/2020… Une vie suspendue… 5 infections #Covid19 au compteur #covidlong #longcovid #ApresJ20 #EM #SFC #pwME #MPE.
🕸️Dr.T, PhD @chydorina
18K Followers 6K Following PhD in Biology (not an MD). Cognitive health and chronic disease recovery.
Faithless @FaithOxenbridge
3K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.
Marvin The Martian @MarvinSPM
1K Followers 7K Following I'm a villain in cartoons and video games. I also wear a helmet and a skirt.
Lia @LiaLoves34
463 Followers 3K Following mother #audhd with severe #longcovid dysautonomia pots since early 2020, now bedbound
Cashapp Enthusiast @elda_durham
31 Followers 447 Following Your average Sonic fangirl that loves memes. * Accept my invitation to win cash on PayPal! https://t.co/HQHTLZD3gg
#LongCOVID Patients I... @pwlcIreland
139 Followers 570 Following Platamh domhanda atá dírithe ar an othar do pháitform phobail do chlongCOVID in Éirinn. #longcovid #healthequity #dataprivacy. Part of @CareConnectlc
Long Covid Kids Rep.o... @LCKIreland
1K Followers 2K Following LCK & Friends Ireland, Associate Acc @longcovidkids. Advocacy & support for kids with #PostViralKids #LongCovidKids #LCKfriends 🧡🧡
luke anderson @lukeand27520593
92 Followers 1K Following Claim extraordinary or ordinary will claim you
Long Covid & ME/CFS R... @LCMECFS
2K Followers 2K Following Sharing the latest research on ME/CFS and Long COVID (post-viral syndromes). Posts are based on peer-reviewed papers, preprints, and trusted sources.
Elizabeth Smith #FBLC @IssyDublinNewAC
224 Followers 1K Following Long Covid long-hauler since January 2021 ❤️ #POTS. Advocate for Long Covid. Management Consultant @EY Animal Welfare Volunteer @Assisi Animal Sanctuary🐈
michelle Lynn myrda l... @shell980907821
418 Followers 919 Following Retired RN of 28 yrs. grateful to be alive humble had severe Long Covid, ME/CFS, MCAS survivor and warrior! not a fan of POLITICS at all! loves nature way more!
Covid Castaways @CovidCastaways
5K Followers 4K Following Covid Castaways focuses on helping those w/ #LongCOVID & COVID #VaccineInjury. LC - 3/2020. 💚💜Chronic disease & chronic pathogen advocate.
bri @briimii
2K Followers 3K Following former indie music lover and sunny weather seeker. #LongCovid #NotRecovered #CovidTinnitus
Massimiliano @Snipperspace
799 Followers 3K Following 53y/man/Nurse and Osteopath/#MECFS (Long Mumps, The only one in the world) from 13/08/2021.🇮🇹 Italy
Vikram Jha @invinciblejha
3K Followers 7K Following Core Agentic AI infra · End to end | Open Source · Responsible · Secure by design. Co-Founder @ Stealth AI Startup
Long Covid Advocacy �... @LongCovidAdvoc
15K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #cripademia book club. 🛍️ https://t.co/8JlRWqy8Id
Long Covid Advocacy I... @LCAIreland
3K Followers 4K Following The voice for Long Covid in Ireland. A patient-led advocacy group fighting for awareness and adequate services in Ireland for all living with Long Covid
Sarah O'Connell @SarahOC_MECFS
5K Followers 5K Following #pwME patient 13 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
𖥔 ݁ ˖ִTV Time w... @wLorelaiandRory
364 Followers 3K Following ✩₊˚.⋆☾⋆⁺₊✧ sharing our love of #TV #Movies #Conventions #Fandom #TWDfamily *will be adding all #FBLC #LongCovidFam accts to personal page* ✩₊˚.⋆☾⋆⁺₊✧ fromTVtime
Dee @po_move
2K Followers 3K Following Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLC
Jenna Simpson-Oliver ... @jenlso
1K Followers 3K Following Lawyer, Twin Momma, Wife, Long Covid since Jan '21. #LongCovid. No tweets are legal advice. @ChronicLawyerMomma on Bluesky
💛Lady w/ LongCovid... @TheExtraFiles
4K Followers 4K Following #LongCovid 2/2020=BEFORE vaccines ~ International #LongCovidAwareness ~ #LongCovidKids *Long Covid better be on my death certificate when I die. ✌🏼💛😷✝️
BlueDash @BlueDash12
3K Followers 8K Following
John Mullin @JohnMul04744813
835 Followers 1K Following Retired computer programmer, author of book meant to save humanity in the long run. Constitution, community, compassion. #DoomBusting . I support vaccination.
Lang Dominique @dlang57500
7K Followers 7K Following Ex-Conseiller municipal- ex-Secrétaire Général adj.Ordre National des Infirmiers- conseiller départemental ordinal - FF cadre hygiéniste #covidlong
Emma Fox @emszlyttle1
1K Followers 3K Following Ex Communications Manager BBC. All views here my own. Life on hold since March 2020 #LongCovid PoTS
Debs13 @BaileyAce13
269 Followers 828 Following
F.A.M. @first_merch
770 Followers 1K Following Activist/Political Tshirts & more. she/her #FreeRickAllen 🍉🌈🏳️⚧️
Au Contraire @J_contraire
254 Followers 4K Following Interests include: Mass infecting diseases | Long Covid | ME/CFS | Autism | PDA | Alexithymia | Civility |Repost/Follow doesn't imply endorsement.
Cinnamon rolling alon... @LongCovidFight
2K Followers 2K Following Supporting people with chronic illnesses, including #MECFS #pwME #LongCovid #pwLC #LongCovidKids #PoTS #MCAS. #CovidIsNotOver #AirborneAware
TiredTara @EndemicPrepared
4K Followers 4K Following Healthcare management, educator, Population Health, RN/RM/ MBA. Ex-runner 🚴♀️cyclist. #FBLC You might know me on other platforms @TiredT.bsky
Flanonymous @Flavanonymous
677 Followers 5K Following
Long COVID Alliance @LongCOVIDAllian
4K Followers 89 Following Research. Advocacy. Education. https://t.co/yE6W9ul1Yd
Patient-Led Research ... @patientled
26K Followers 703 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Bearable - Mood & Sym... @BearableApp
976 Followers 94 Following Health and habit tracking for wellbeing. Reclaim control over your wellbeing and gain unique insights into what influences your mental & physical health.
Nicole Filippone, Aut... @sensorystories_
40K Followers 19 Following Autistic advocate and author... connecting dots about autism and related neurodivergent conditions. Free resources available on my website ↙️
Dylan Ogline @DylanOgline
203K Followers 134 Following Adventure seeker. Believer in equality, the best of people, and a better future for all. 1 Cor 10:31.
bri @briimii
2K Followers 3K Following former indie music lover and sunny weather seeker. #LongCovid #NotRecovered #CovidTinnitus
Dee @po_move
2K Followers 3K Following Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLC
Jenna Simpson-Oliver ... @jenlso
1K Followers 3K Following Lawyer, Twin Momma, Wife, Long Covid since Jan '21. #LongCovid. No tweets are legal advice. @ChronicLawyerMomma on Bluesky
💛Lady w/ LongCovid... @TheExtraFiles
4K Followers 4K Following #LongCovid 2/2020=BEFORE vaccines ~ International #LongCovidAwareness ~ #LongCovidKids *Long Covid better be on my death certificate when I die. ✌🏼💛😷✝️
Long Covid & ME/CFS R... @LCMECFS
2K Followers 2K Following Sharing the latest research on ME/CFS and Long COVID (post-viral syndromes). Posts are based on peer-reviewed papers, preprints, and trusted sources.
🗣️ tiger 🐅 is... @Algorithmus22
724 Followers 2K Following viruses arent equal #Masketair https://t.co/bTP8iGDbb8 fitterhappierfan@[email protected]
Antoni Porowski @antoni
453K Followers 409 Following All things food and then some on Queer Eye. Co-founder @YummersPets. My new cookbook LET'S DO DINNER is out now 🙌🏼.
Jennifer Taub @jentaub
198K Followers 0 Following Law prof and author of books BIG DIRTY MONEY and OTHER PEOPLE’S HOUSES. On bluesky @jennifertaub.com https://t.co/p7ak8BKfYO
Bot for Equality @BotForEquality
3K Followers 44 Following I‘m just a young intersectional bot, amplifying gender equality. Although I’m improving every day — I still welcome your feedback!
Mary-Jane Kohler MT(A... @TruthAbout_ME2
3K Followers 5K Following Homebound former competitive swimmer & Medical Technologist w/35 years post-viral Myalgic Encephalomyelitis #pwME #LC ally 🌈ally,🌱 loves cats 🐱
(((Kathie))) @KathieKaneW
2K Followers 3K Following Researcher, life enthusiast despite living the #LongCovid life. #ME tired of the theocracy.
Long Covid and Chroni... @covidwellness
823 Followers 1K Following While our study is on pause we encourage chronic pain sufferers to sign up on Kinnected for peer support and to exchange stories of sickness and healing.
Nwiss 🇸🇪🇪�... @Gronnet
4K Followers 2K Following Health & Medical Science (views my own) News and Research on #LongCovid #FBLC #MEspine #EDS Longhauler since March 2020, (3x Covid inf) #MECFS since 2011
Long & Tired Road #FB... @LongTiredRoad
691 Followers 432 Following Trying to find a way out of the LC haze, hopefully with a little help #FBLC
Nele @NeleHelena
5K Followers 1K Following I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity
RTHM @RTHM_Health
6K Followers 3K Following RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Dr. Jennifer Curtin @jencurtinmd
4K Followers 2K Following Physician. Entrepreneur. Nerd. 🍊YCW22. RTHM co-founder. Recovered ME/CFS. Treated infection assoc illness b4 Covid. Tweets/DMs are my own & not medical advice.
Long Covid-19 Foundat... @longcovidfdn
2K Followers 589 Following UK-based Charity to support #Longcovid Sufferers Globally #FBLC Our informational channel https://t.co/daTygxmvVH…
Harry Leeming @HarryLeeming
5K Followers 890 Following Founder of @visible_health | #MECFS #LongCovid | Building for invisible illness
Putrino Lab @PutrinoLab
36K Followers 406 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Lynn Chisholm @LynnChisholm14
276 Followers 125 Following Nurse, married, positive thinker, currently struggling with #longcovid
Nick H @breakfastnick
1K Followers 409 Following
Dr. Beate Jaeger, MD @BeateJaegerMD
6K Followers 54 Following Offical twitter account of Dr. Beate R Jaeger, MD, Long Covid/MECFS Clinician and Researcher, International Collaboration on Covid https://t.co/LJ7xq2q3r6
Kindred Long COVID Su... @kindred_health
2K Followers 452 Following Kindred is an interactive Long COVID community offering support and research opportunities. We do care. We do listen. We are here for you.
Occupational Therapy ... @OTforLC
2K Followers 1K Following Occupational Therapy/Ergotherapie for Long Covid Using Lived Experience, Professional Practice and Research to support people to Live Life Well with Long Covid
James Glen @james__glen
6K Followers 4K Following Clean our air, rivers & politics. ● Founding member @long_covid ● #FBLC - Follow Back #LongCovid ● #FBPE 🇪🇺 🐝#WatfordFC
Karen @KarenHa17610974
528 Followers 1K Following A Yorkshire lass with a glass half full. Music ignites my soul...love & light fill my bowl 🙏❤️✨
Fiona @fificaro1
1K Followers 2K Following Nature-loving city dweller. Sewing enthusiast and crafter. Life on pause due to Long Covid Oct 2020 #LongCovid #CountLongCovid #FBLC #MECFS
Elizabeth Smith #FBLC... @IssyDublin
1K Followers 1K Following Long Covid long-hauler since January 2021 ❤️ #POTS. Advocate for Long Covid. Management Consultant @EY Animal Welfare Volunteer @Assisi Animal Sanctuary🐈
limehouse @limehou11657626
913 Followers 786 Following Contracted covid19 december2020 and now battling the new disease LONG COVID, i am reaching out for help. These views have nothing to do with my employment.
LongCovidPodcast @longcovidpod
5K Followers 3K Following Podcast hosted by Jackie Baxter, bringing together lived experience, medical experts, researchers & solidarity on this lonely #LongCovid journey #FBLC
Jennifer Brea🦒 @jenbrea
36K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Dr Elisa Perego @elisaperego78
36K Followers 1K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Amy Proal, PhD @microbeminded2
30K Followers 5K Following Microbiologist at @polybioRF: studying how persistent pathogens drive inflammaging, mitochondrial dysfunction & cognitive decline #longcovid #lyme #alzheimers
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 4K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine ONLY POSTING ON UPSCROLLED NOW
Shaney Wright @ShaneyWright
17K Followers 443 Following @WestHam Fan ⚒ 🏴 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
Gez Medinger @gezmedinger
19K Followers 686 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Resia Pretorius @resiapretorius
29K Followers 270 Following Vice-Dean: Research and Postgraduate Students, Faculty of Science, Stellenbosch Univ; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
The Long Covid Sessio... @SessionsTlc
7K Followers 1K Following Longest running Podcast on #LongCovid. In depth interviews with the world’s leading doctors and scientists trying to work on the pandemic’s long tail.
Dave. @UnwantedGuest3
5K Followers 1K Following Sport, music, family, fitness, music, nature. English/British/European. Warning; swearing #LongCovid since March 2020. #countlongcovid #FBLCYou might like
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