https://t.co/MZCAYaWYg7
[email protected]
Nurse practitioner + Mental Health Social Worker navigating #LongCOVIDlongcovidrealtalk.com SF Bay AreaJoined August 2024
KatherineMarie talks about how some days it is difficult to just exist and grapples with the uncertainty of whether she will ever fully recover from Long COVID.
Long COVID: Uncertain Remission youtu.be/JOUu5WbP5d4?si… via @YouTube
The best is when you’re out in the wild and someone says, “Wow, you have Long COVID… but you look so good!” Or “Hm I hear you’re not working anymore”. Then I say: “yes, and if you talk to me for long enough, you’ll soon find out why.” 😉
#LongCovid#Disability#spoonie
The inspirational and exceptional @CynthiaAdinig episode!!!!
Cynthia has been one of the most well-known Long COVID advocates, has testified in front of Congress, has been featured in the @washingpost and @TIME Magazine.
open.spotify.com/episode/5VdE6d…
926 Followers 2K FollowingSmall but mighty 💪🏽 #earlyeducator, visual artist, health enthusiast advocating for #LongCovid awareness. No longer #essentialworkers, speak truth to power!🦋
2K Followers 5K FollowingCold as a razor blade, tight as a tourniquet,
and dry as a funeral drum 🥁 🪒
Autistic AF. deal with it. 👍🏽
Musician / Producer / Mixer
Long Covid 😷 🛸 ⚠️
826 Followers 2K FollowingSinging has brought joy and friendship as we navigate the life-changing experience of Long Covid. Time to find our voice again. Join us via https://t.co/hwyYtuLHZE
1K Followers 4K FollowingAdvocate in #education #justice #juvenilejustice #philanthropy w/ #racialequity #racialjustice #intersectionality as a guide. Living w #LongCovid S/Her pronouns
4K Followers 4K Following#LongCovid 2/2020=BEFORE vaccines ~ International #LongCovidAwareness ~ #LongCovidKids
*Long Covid better be on my death certificate when I die.
✌🏼💛😷✝️
2K Followers 2K FollowingSharing the latest research on ME/CFS and Long COVID (post-viral syndromes). Posts are based on peer-reviewed papers, preprints, and trusted sources.
6K Followers 4K FollowingProgram Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
1K Followers 4K FollowingAdvocate in #education #justice #juvenilejustice #philanthropy w/ #racialequity #racialjustice #intersectionality as a guide. Living w #LongCovid S/Her pronouns
2K Followers 5K FollowingCold as a razor blade, tight as a tourniquet,
and dry as a funeral drum 🥁 🪒
Autistic AF. deal with it. 👍🏽
Musician / Producer / Mixer
Long Covid 😷 🛸 ⚠️
926 Followers 2K FollowingSmall but mighty 💪🏽 #earlyeducator, visual artist, health enthusiast advocating for #LongCovid awareness. No longer #essentialworkers, speak truth to power!🦋
29K Followers 18K FollowingWe can no longer support a platform that currently targets marginalised people and has become a toxic and unsafe environment. Please see our pinned post
4K Followers 266 FollowingFormer NHS GP. Hit by Covid-19 pre lockdown March 2020. Long Covid advocate - LongCovidDoc on Insta and ambassador for @covidaidcharity.
9K Followers 122 FollowingInfectious Disease Immunology physician specializing in complex chronic diseases. Views are my own; no medical advice given.
https://t.co/HkQt5xRhlP
755 Followers 995 FollowingLong Covid/ME, POTS and MCAS since 2020
Nova Scotian, collects beach glass, cat mama (2), retired
Comments are MO
@[email protected] - Mastodon
422 Followers 689 Following(Practical) Hope for the millions suffering with #longcovid. Have you recovered? We want to know how! |
Former (?) ELA teacher. | #Longhauler since Dec. 2021.
674 Followers 110 FollowingLong-Covid Brain Fog Severe, Trying to medically understand how to recover / Before the covid without pathologies, 30 years old, athlete, worked with literature
319 Followers 746 Following🇨🇦first waver Mar ‘20 sharing stories, strategies, and support for fellow Long Covid sufferers. Listen everywhere you get your podcasts.
220 Followers 771 FollowingPatient-Centric community platform for Long Covid patients in New Zealand #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
145 Followers 476 FollowingPatient-Centric community platform for Long Covid patients in Maine #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
161 Followers 494 FollowingPatient-Centric community platform for Long Covid patients in Canada #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
130 Followers 226 Following#LongCovid since Autumn 2021. Previously busy: mum/wife/daughter; employee; volunteer; and walker of the dog. #StopRestPace. RT often 4 file.
127 Followers 239 FollowingPatient-Centric community platform for Long Covid patients in Alaska #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
143 Followers 353 FollowingPatient-Centric community platform for long Covid patients in Arkansas #healthequity #longcovid #healthjustice #dataprivacy. Part of @CareConnectlc
127 Followers 209 FollowingPatient-Centric community platform for long Covid patients based in Alabama #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
5K Followers 1K FollowingOnafhankelijke patiëntenvereniging voor én door #longcovid patiënten. Volg ons ook op Bluesky, FB, LinkedIn en Instagram. Lid van oa PCNN en @longcovideurope
3K Followers 402 FollowingME since 2016 (Mild), 2019 Moderate , 2020 Severe
Long Covid since March 2020 (V Severe)
Funcap55 = 1.9 - 2.1 (Severe)
Discourteous behaviour = block.
13K Followers 5K FollowingP/w Long Covid, writer, nerd, loudmouth, green thumb, artist, queer, ND, & Disability Extremest!
No alt text= no RT.
Dont tag me, ask to be added to the GC
139 Followers 569 FollowingPlatamh domhanda atá dírithe ar an othar do pháitform phobail do chlongCOVID in Éirinn. #longcovid #healthequity #dataprivacy. Part of @CareConnectlc
28 Followers 59 FollowingTake a break from social media without missing any relevant #LongCovid updates. Subscribe and receive research news in your mailbox, link below
221 Followers 270 FollowingCovid Mar 2020 had long covid ever since! POTS+slow blood flow in left IJV+poor gas exchange+myocarditis +MCAS+gastric anaphylaxis+menopause at 41+I’m bendy!
89 Followers 12 FollowingWe fund research to identify the biological causes of Long COVID and effective treatments for millions of people around the world.