Visual Snow Initiative @VisualSnowInit
Global awareness, education, recognition, resources, and research for Visual Snow Syndrome 👁️🌨️🧠 #VisualSnowSyndrome linktr.ee/visualsnowinit… Los Angeles, CA Joined January 2018-
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This part of my life is called “#VisualSnowSyndrome”
We're grateful to Shoutout Miami for helping share Sierra's story and highlighting the importance of patient advocacy, resilience, and the Visual Snow Initiative. 🤝
Sierra Domb, Founder of the Visual Snow Initiative (VSI), was recently featured by Shoutout Miami. In the interview, Sierra shares her journey navigating health challenges, overcoming obstacles, and building VSI, dedicated to helping others with VSS. visualsnowinitiative.org/awarness/sierr…
healthcare professionals, and the broader community. 🔬📚 Raising awareness matters because clearer recognition leads to better conversations, better support, and continued progress for people affected by #VSS. 💙 tiktok.com/@visualsnowini…
may share overlapping features, VSS is recognized as a distinct condition with its own symptoms, diagnostic criteria, and impact. Scientific #research and advocacy have helped bring greater awareness to this distinction, improving understanding for patients,
June is National Migraine Awareness Month. 💜🧠 Many people with #VisualSnowSyndrome report having migraines, especially #migraine with #aura. At the same time, migraine and Visual Snow Syndrome are two different neurological conditions. While they can occur together and
At the #VisualSnowInitiative, we remain committed to advancing research, increasing awareness, and supporting progress toward better diagnosis, treatments, and quality of life for those affected by VSS. 🔗 Learn more through the following link: visualsnowinitiative.org/research/a-new…
differences in how motion-related visual information is processed in the brain. While visual trailing can be disruptive, studying this symptom may help researchers better understand why VSS experiences can vary from person to person. 💡
A new study is helping researchers better understand how #VisualSnowSyndrome (VSS) may affect the way the #brain interprets movement. 🔬🧠 🔗: visualsnowinitiative.org/research/a-new…
Please continue supporting and donating through our website so more Visual Snow Syndrome research can continue. Read more about our $100,000 donation through the following link: visualsnowinitiative.org/fundraising/vi… #donate #support #research
Thank you, with our deepest and heartfelt gratitude, to all of VSI’s supporters whose generosity has made this #donation and ongoing research possible. 💙
processing through the #VISION Study 👁️. Together, these aims support the broader goal of identifying the biological mechanisms behind VSS and advancing more targeted, evidence-based approaches to treatment.
this complex neurological condition. Their work uses advanced neurophysiology and neuropathology methods 🔬 to investigate the #brain mechanisms underlying VSS and advance the development of targeted #treatment options.
The Visual Snow Initiative has donated $100,000 to support #VisualSnowSyndrome research at King’s College London 🧠, where leading researchers Dr. Francesca Puledda, Dr. Peter Goadsby, and their clinical research team are conducting multifaceted studies into
👉 Join using the link in our bio or visit: ancan.org/visual-snow-sy… We hope to see you there! 🩵
This peer-moderated virtual group provides supportive face-to-face conversations, friendly and relatable connections, emotional encouragement, and a safe space to share experiences. (Note: This group is not for medical advice. Please follow the guidelines.)
Join us TODAY for our Visual Snow Syndrome Support Group @ 2:00 PM (EST)! 💬 📅 Don’t forget to mark your calendar for future sessions: 1Every first Wednesday of the month at 8:00 PM EST 2Every third Tuesday of the month at 2:00 PM EST 👉 ancan.org/visual-snow-sy…
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