Long-Covid Brain Fog Severe @fog_post
Long-Covid Brain Fog Severe, Trying to medically understand how to recover / Before the covid without pathologies, 30 years old, athlete, worked with literature Barcelona, Spain Joined August 2021-
Tweets950
-
Followers674
-
Following110
-
Likes1K
covid + again My body began a process of strong fighting against the virus, should I let it do its job without medications, hoping that this will help me not only with the acute condition but also with the long covid?
@chydorina @remissionbiome 5/0/50/30
I have an acute covid infection again and I feel like I went back 3 years. I will at least return to my long covid state or will this start again from 0, has anyone experienced something similar? send hope
I have covid again and this time it's like a thousand times worse. I feel like the little bit that had improved is gone! If you had everything ready, what would you take? ivig? plasma apheresis? paxlovid? any suggestions?
"Giants NFL legend Mark Bavaro reveals he contemplated suicide as he fought debilitating case of Long Covid..admits he was praying he would have a heart attack" 'It felt like my brain was boiling..I had fatigue. The noise in my head was just unrelenting" dailymail.co.uk/sport/nfl/arti…
Could a nasal covid antigen test work in a stool sample? Why are there people who have always tested negative in the throat (antigens and pcr) but can infect and have covid? Pls help @ahandvanish @calirunnerdoc @inducekarmaaa @roxy_mojo @D_Bone @ShaneyWright @Gronnet @dbdugger
@lapis_lazuli11 It will seem superficial nonsense but I have the same bump on my calf (before I had long covid) and I have heard talk about connective tissues about it
I just don't understand why there isn't a doctor by my bedside who says, "You're very sick. I'm going to do everything I can to understand your illness and look for safe treatment options. In the meantime, tell me what you need to be as comfortable as possible" #severeME
People don’t understand how bad #longcovid is. I would trade a arm to be healthy again. I would trade being paralyzed from the waist down. I would take 10 healthy years of my life vs another 40 in this hell. So yeah I would cash out $45k from my 401k to try ampligen for year.
“This is the first randomized controlled trial showing that modulation of the gut microbiome with a novel microbiome formula alleviates gastrointestinal and neuropsychiatric symptoms of #LongCovid” gastroendonews.com/PRN/Article/06…
Nicotine patch test completed. I did it for 7 days & I can confirm I’m 100% still fucked with long covid
@me11619844 @AlexSprackland @Dakota_150 The big problem with medicine is that, I have shared absolutely everything, diseases are not embarrassing and treatments and studies should be public adopting this stance could help hundreds
@me11619844 @AlexSprackland @Dakota_150 when the suggestions for a drug are accompanied by "I write to you privately" it makes me so suspicious that I had to tweet it
@Dakota_150 And how do we know if these structural changes are permanent?
I challenge any incredulous long covid doctor to get these skin spots in less than a minute! also to psychologists! let's see achieve that with the mind 🕣🕢🕚
LongCovidPharmD @organichemusic
36K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
Cat (CovidSolidarity) @CovidSolidarit1
14K Followers 5K Following Denial ≠ hope. Norms ≠ truth. Tsunami Tendenko. Please do not give me unsolicited medical advice. If you do after I have asked you not to I will block you.
Brian Fog @useless_priest
9K Followers 5K Following LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Read: https://t.co/U1POSyEkKJ
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Daniel Brittain Dugge... @dbdugger
18K Followers 6K Following #LongCovid Advocate. Bail Bond Software Solutions. When It Hits The Fan Bail Bonds.
Hazie Thompson @haziethompson
8K Followers 2K Following Long Covid 2020, Mitigation Advocate https://t.co/hHmxgAY5S4
Long Covid Advocacy �... @LongCovidAdvoc
15K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #cripademia book club. 🛍️ https://t.co/8JlRWqy8Id
Dame Sa 🐝 3.5% @LongCovidHell
10K Followers 7K Following Raising awareness for #LongCovid and the need for treatment. I suffered heart, lung & eye damage from a 2020 Covid infection. Politically homeless. #NovavaxNow
Dave. @UnwantedGuest3
5K Followers 1K Following Sport, music, family, fitness, music, nature. English/British/European. Warning; swearing #LongCovid since March 2020. #countlongcovid #FBLC
🕸️Dr.T, PhD @chydorina
18K Followers 6K Following PhD in Biology (not an MD). Cognitive health and chronic disease recovery.
Jon Wright 🇬🇧�... @Wright1983Jon
1K Followers 1K Following Rail Worker, Engineering Geologist, Former Cyclist, Labour Party Member, #DRFC Fan. Proud to be British.
Aaron (Long Covid + M... @Aaronca11
804 Followers 1K Following @lcmebillboards with @alexsprackland suffering from severe nervous breakdown since Oct 2024. Advocacy on hold.
Dramata @dramata_tloa
5 Followers 144 Following
Heidi_B @HeidiBaumgar
98 Followers 311 Following
rustee @rustee20
527 Followers 2K Following I am just here to try and make sense of the world and learn from others. Not big on posting. Based
Jan @Jan995783030021
33 Followers 2K Following
app mobile @mapp4619
156 Followers 78 Following “The infinitive unknown and possibilities come true!”. Freedom is here!
Emily @emily_3391
38 Followers 516 Following 🇨🇦 Canadian. 33 yo. Bedbound w severe long covid since '23. suspected POTS. prior social media manager. living w parents who don't understand this illness
Long Covid Bear @Bernerbaeri
6 Followers 40 Following Swiss dude🇨🇭✌️ Worked in finance, travelled the world and loved sports. Long Covid since 05.2023😥
Alex-seas @AlexxSeas
377 Followers 964 Following FLORIDA CHILD TOO ANGRY TO DIE. Crazed Chaotic Good. Former: Naturalist Freelance biologist, Game enjoyer Now sick and disabled severe terminal post-covid
Luzia Wicki @LuziaWicki57470
2 Followers 60 Following
Katherine Marie @LCRealTalk
14 Followers 172 Following https://t.co/MZCAYaWYg7 [email protected] Nurse practitioner + Mental Health Social Worker navigating #LongCOVID
Lindiwe Marwarwa @Lindzy_Rose
69 Followers 191 Following
Madelinenerdfighter f... @Madelinenerd
1K Followers 3K Following Yes @IamMADELINEpod is me! Media links in it's pin tweet. I'm 43yr+ #longviral #EBV #pwME. Fighting to live but I can't do it alone! Please #DontLetMeDie
Rachal Renee Young @RachalReneeYou1
3 Followers 159 Following
Ni'matul Azizah @myng_a
438 Followers 2K Following @ppnasyiah | mom of three | scoliosis fighter | living with #longCOVID (23/07/21)
Phil James @philj12010
485 Followers 283 Following better to know the truth than to know the lie and then the truth. Sticks and stones will break my bones, but names will never hurt me.
Whitney Kutz @dwkutz
60 Followers 3K Following
Bruce Dodson, MC HE �... @BruceDodson
339 Followers 853 Following Gentleman Scientist, Writer, Life Hacker, Hustler, Jester, Bard
Justin Hall @Justin_Hall2013
105 Followers 853 Following
Priti Singh @p_sing01723073
5 Followers 60 Following
Jacky Rodriguez @JackyRodriguez
48 Followers 1K Following
TheCryptoMouth @TheCryptoMouth
2K Followers 2K Following I create. I build. In business and life. Nothing here is financial advice, just my opinion.
ahmed rouizi @AhmedRouizi
325 Followers 525 Following
Jacqueline rouse @jacquirouse22
324 Followers 2K Following
li @li1216447978810
8 Followers 114 Following
Dr SY Young @Susanne01693372
8 Followers 230 Following
Joe Gonzales @JoeGonzale12086
1 Followers 12 Following
Argentinos con Secuel... @PostCovidenArg
175 Followers 1K Following Cuenta para encontrarnos entre personas de Argentina con Secuelas de Covid-Post Covid/ Visibilización #CovidPersistente #LongCovid #CovidArgentina #MaskUp
Voices of Long Covid ... @voicesoflcovid
320 Followers 747 Following 🇨🇦first waver Mar ‘20 sharing stories, strategies, and support for fellow Long Covid sufferers. Listen everywhere you get your podcasts.
Jenn @JennBrandice
141 Followers 410 Following
Holger Heck @Holger_Selected
9 Followers 36 Following
zivo.life @zivolife
41 Followers 459 Following A unique powerhouse of bioavailable protein, fiber, vitamins, polyphenols, beta glucans, minerals, essential fatty acids and antioxidants. 🌱🙏
Wendy Buehre @wendyswerks
11 Followers 2K Following
COVIDBRAIN @COVIDBRAINpubs
29 Followers 232 Following First-wave long-hauler since 2020, with weird neurological symptoms, that in my case may be best to share anonymously. Sharing long COVID brain publications.
ChronicIllnessHumor @HumorChronic
4K Followers 2K Following https://t.co/b2LRFsTRox https://t.co/QSzrqdhVhT #chronicillness #autoimmune #funny
יוסי פרס @Yosiperes
97 Followers 3K Following
Idoia Mujika @MujikaAltuna
455 Followers 6K Following
CleanTheAir @CleanTheAir2024
265 Followers 4K Following
Arielita Xlander🩵 @Arielita_X
380 Followers 1K Following 🐦 #ComandoPsycho ✨😚. cotorreo del #clima, #horóscopos y RT #PoliticaMéxico #Catolica #Petlover #Activista
carlos perez @Carlosfreedom10
143 Followers 3K Following
®𝔻r$¥sŦm ʕ(⟁... @Eb3rSonCMonToY4
333 Followers 7K Following S.O.Ex-Agent SFN⟁ (⟁LoGisT⟁) (#N👁) #RealGeOp$¥sŦm🌎° #Bio-M-Ethic-Geπ-Info-Tech-IA-Weapons🌐* #DigVisuAnaly⟁ ®UL71M47UM #NeuPL⛮ 23/9/24 #OpInFac7oRy👁VÎXīŌŅÂŘ¥
Josh Fox @joshfoxfilm
49K Followers 4K Following Oscar-nominee. Emmy winner. director of GASLAND, THE TRUTH HAS CHANGED, HOW TO LET GO OF THE WORLD,AWAKE. also @joshfoxfilm on Instagram . #banfracking!
Vijaykumar S @vijaykumar_shiv
149 Followers 1K Following
Daniel @opus__33
134 Followers 141 Following
Breathing for Long Co... @LCBreathing
23 Followers 201 Following Breathing coaches with lived experience of #LongCovid. Join our courses to learn the best breathing exercises & how to do them.
Shaney Wright @ShaneyWright
17K Followers 443 Following @WestHam Fan ⚒ 🏴 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
LongCovidPharmD @organichemusic
36K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
Eric Feigl-Ding @DrEricDing
757K Followers 15K Following Health & economic warnings. Health policy, epidemiology & finance data. Faculty/Chair of Public Health @NECSI. Fmr @Harvard @JohnsHopkins. (backup @EricDingEpi)
Dr Elisa Perego @elisaperego78
36K Followers 1K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
AJ Leonardi, MBBS, Ph... @fitterhappierAJ
103K Followers 4K Following Junior Physician-Scientist Views own
Resia Pretorius @resiapretorius
29K Followers 270 Following Vice-Dean: Research and Postgraduate Students, Faculty of Science, Stellenbosch Univ; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Eric Topol @EricTopol
782K Followers 672 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
Putrino Lab @PutrinoLab
36K Followers 406 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
WesElyMD @WesElyMD
56K Followers 343 Following Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, PICS, Dementia, Delirium. Tweets my own. Still learning.
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 4K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine ONLY POSTING ON UPSCROLLED NOW
Morgan Stephens @morganstephensa
12K Followers 2K Following fact check reporter & national correspondent @tnd, former @kob4, White House @business, @cnn, poet TILT, @usc alum, Long Covid advocate
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Read: https://t.co/U1POSyEkKJ
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Long Covid SOS @longc... @LongCovidSOS
26K Followers 978 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation https://t.co/C4SrS4K6SW https://t.co/v7y3yvrEpf
Hazie Thompson @haziethompson
8K Followers 2K Following Long Covid 2020, Mitigation Advocate https://t.co/hHmxgAY5S4
S Blitshteyn MD, FAAN... @dysclinic
23K Followers 2K Following Neurologist/Researcher, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic. Tweets🚫med advice. Opinions my own.
Nwiss 🇸🇪🇪�... @Gronnet
4K Followers 2K Following Health & Medical Science (views my own) News and Research on #LongCovid #FBLC #MEspine #EDS Longhauler since March 2020, (3x Covid inf) #MECFS since 2011
Imogen @inadarkroom247
1K Followers 362 Following 27, UK and Dying from covid induced very severe ME. POTS + MCAS. Too severe to post much anymore
Ashley Robjohns @Ashram77
229 Followers 723 Following DipBus BNG GradCertNg(EmgcyNg) ME/CFS Fibromyalgia Permaculture Designer Anticapitalist All opinions are your own @[email protected]
Hana @cojehp
1K Followers 1K Following Weeping and gnashing of teeth. #longCOVID 2022 https://t.co/nTwORsLrYw
Nele @NeleHelena
5K Followers 1K Following I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity
Amy @alexandrite113
8K Followers 896 Following Yeeting into the void ME/CFS. Was very severe, now moderate
Alex Sprackland @AlexSprackland
2K Followers 2K Following Engineer. BMX. Powerlifter. Electronic music producer. Long Covid since March 2020 has put all that on hold, though 😓. https://t.co/NwtnfzoDjG
Miles W. Griffis @mileswgriffis
5K Followers 1K Following Co-founder/editor @thesicktimes Columnist @highcountrynews [email protected] #LongCOVID
Alex-seas @AlexxSeas
377 Followers 964 Following FLORIDA CHILD TOO ANGRY TO DIE. Crazed Chaotic Good. Former: Naturalist Freelance biologist, Game enjoyer Now sick and disabled severe terminal post-covid
Lundin Advocates @LundinAdvocates
1K Followers 2K Following MEDICAL ADVOCATE ⛑️Autonomic Neurology, Neuroimmunology, Immunotherapy Access & Insurance prior authorization slayer🤺Patient in Remission, prev. Human Svc.Mgmt
Tymes Trust @tymestrust
2K Followers 13 Following We hold the Queen's Award for Voluntary Service : MBE for volunteer groups. We receive no government funding. Exec Director @JaneCColby
idris guessous @iguessous
699 Followers 65 Following médecin chef du Service de médecine de premier recours HUG - Vice-Doyen de la faculté de médecine de Genève UNIGE - membre du comité direction de la SSMIG
Raven Baxter, Ph.D. @ravenscimaven
151K Followers 177 Following Molecular biologist. Science communicator. Founder & CEO of @withfervae — the first social media management platform built for knowledge sharers.
InnerSurface @ISurface
522 Followers 420 Following De gôche, cinéma, drag, art, plant ... Errance médicale + SAMA + RCH / Medical wandering + MCAS + IBD - Against Fluoroquinolones + Solidarity For Long-Covid
Georgi Parvanov @GeorgiParvanov4
1K Followers 964 Following Former life lover, current #LongCOVID sufferer. #FBLC
Meriam Rllb @lowbatterydream
532 Followers 402 Following PharmD, 26, Long Covid March 2020 | ME/CFS | POTS | Personal IG : meriamrhallab | Chronic illness IG : lowbatterydreams
Leon @leowmya
2K Followers 682 Following 27y. | ME/CFS changed my life in 2017 and destroyed it in 2019.
Willow @__Granuaile__
3K Followers 1K Following Autistic w SWS, hEDS, LC - navigating life w brain aneurysms & terminal dx. 1st Wave Covid survivor & stroke survivor. Posts focus on LC & my cats 🐈 🏳️🌈
Bob Wachter @Bob_Wachter
240K Followers 287 Following Chair, UCSF Dept of Medicine. Career: What happens when a poli sci major becomes an academic MD. Author, "A Giant Leap" on Health AI. Hubby/Dad/Grandpa/Golfer.
PolyBio @polybioRF
14K Followers 2K Following 501(c)3 transforming how LongCovid, ME/CFS, Lyme+ and Alzheimer’s are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
César Medina @CesarMetlab
692 Followers 1K Following Social|bio|hack___🏴☠️💜 Comunidad, diseño e innovación cívica. Laboratorio Metropolitano |Metlab 💣 ☭ #LongCovid #ChronicIllnessAdvocacy
Dr. Gustavo Aguirre-C... @Aguirre1Gustavo
12K Followers 11 Following Treatment of LongCOVID,Post-Vax,ME/CFS,FM Creator of Trial for Viral Persistence,Microclots https://t.co/6Y0z9pQN13 https://t.co/TXxbrQw8QW
Tom Marshall @TomPMarshall
3K Followers 1K Following Researcher in Public Health & Primary Care. All views my own. #electronicmedicalrecords #Cardiovasculardiseaseprevention #healtheconomics
Long Covid (PASC) Mé... @CovidComunidad
5K Followers 1K Following Colectivo de pacientes con #LongCovid en lucha por el reconocimiento, protocolos de atención e investigación. Somos un grupo de acompañamiento y solidaridad.
Alejandro Antonio Her... @Alejandroide96
1 Followers 3 Following
Javiera Casanova @jacasmont
17 Followers 1K Following
Long Covid Apheresis ... @ApheresisLC
2K Followers 61 Following A community dedicated to apheresis for long covid, post vac syndrome and chronic illnesses. Join us: https://t.co/OSTWCUMUdV
Amy Proal, PhD @microbeminded2
30K Followers 5K Following Microbiologist at @polybioRF: studying how persistent pathogens drive inflammaging, mitochondrial dysfunction & cognitive decline #longcovid #lyme #alzheimers
Berlin Cures @BerlinCures
5K Followers 270 Following Berlin Cures ist ein junges Biotechnologie Unternehmen, welches das Therapeutikum BC007 gegen Autoantikörper induzierte Krankheiten erforscht.
Jérôme Larché @Jerome_Larche
4K Followers 3K Following Médecin interniste/ reanimateur médical Référent Parcours Covid long ARS Occitanie sepsis/medecine intensive/covid long/phages
Miguel García Knight @MiguelGarKni
400 Followers 919 Following Laboratorio de Enfermedades Virales Emergentes. PI @biomedicasunam. Host-pathogen interactions, RNAi, immunity, virology, evolution, human health, mosquitoes.
@Dr Jenny Ceolta-Smit... @JCeoltaSmith
3K Followers 4K Following Taking a rest from advocacy Activist health, well-being, welfare & work #LongCovid #FBLC @WorkingWithLC Retired occupational therapist, PhD #SuicidePrevention
Dave. @UnwantedGuest3
5K Followers 1K Following Sport, music, family, fitness, music, nature. English/British/European. Warning; swearing #LongCovid since March 2020. #countlongcovid #FBLC
Neurology Today @NeurologyToday
65K Followers 3K Following The official news source of the American Academy of Neurology, published by Wolters Kluwer.
Sonia Villapol, Ph.D.... @svillapol
12K Followers 2K Following 👩🏻🔬Associate Professor 🧠 NeuroScientist🚀 Galega en Houston 🔬https://t.co/Ep8vZ2bxTU 🧬#TBI #alzheimer #TweetsAreMyOwn 👩🏻💻Writing about science.
Lenka @lenka_ags
9K Followers 300 Following Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
Brain & Life @BrainandLifeMag
39K Followers 1K Following Brain & Life is the leading resource for brain health and neurologic disease. Powered by the trusted neurologists of the American Academy of Neurology.
American Academy of N... @AANmember
46K Followers 1K Following The official account of the American Academy of Neurology.
Todd Davenport @sunsopeningband
13K Followers 4K Following Chief rapscallion & picaroon. Husband. Dad x3. Upstreamist. Pracademic. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. DPT PhD MPH.
Ed Yong is not here @edyong209
333K Followers 2K Following Science writer. Author of AN IMMENSE WORLD. Not on Twitter any more. Find me on Bluesky or through my newsletter: https://t.co/sUMoqFWZWg.









