IIPCOR @iipcor
The Innsbruck Institute of Patient-Centered Outcome Research (IIPCOR) is a non-profit association dedicated to promoting patient-centered research in medicine. iipcor.org Innsbruck, Austria Joined November 2020-
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The PIONEER consortium publishes an Article in Press: “The Key Role of Patient Involvement in the Development of Core Outcome Sets in Prostate Cancer” in @ElsevierConnect. It highlights how patients co-create future recommendations for outcome selections. bit.ly/3AbqZ0R
Il secondo modulo dedicato a REDCap di #GIMEMATraining approfondirà le funzionalità principali del sistema. Inoltre sarà illustrato come gestire un progetto longitudinale o una survey. 📅 Mercoledì 6 ottobre ⏰ 15:00-16:30 Iscriviti al webinar ↓ gimema.it/redcap-modulo-…
📢 Coneix de primera mà com funciona i com es pot participar en la #recerca en #salutmental! A una nova edició de la Jornada de promoció de la recerca en salut mental Tu tens la paraula! Inscripcions 👉 [email protected] Programa 👉bit.ly/JornadaSalutMe…
Do you have a #research question that would benefit from patients or public involvement? Until the 31.10, candidates from Austrian research organisations, Unis, FHs, patient organisations and NGOs can apply 👇Contact us for advice! #medtwitter ppie.lbg.ac.at/fund/ppie-call…
@GilliosaSB on patient-centric clinical trial design #ESMO21 #MPNE #WECANwatch @WECANadvocate
Our SISAQOL-IMI website is now live! Find out more about the aims of the project, the researchers involved in the consortium, and more - event.eortc.org/sisaqol/our-mi…
📢COME WORK WITH US! 📢 We are looking for research fellows to join our AI & Digital Health Research Team @uhbtrust. Our team works on the evaluation, implementation and regulation of AI in #healthcare for patient benefit. jobs.nhs.uk/xi/vacancy/916… Msg me for informal enquiries.
@FGIMEMA @OUPAcademic Thank you, it was great working with you on this!
How can we improve measurement of #HRQOL in young people? @asdarlington and @SCSodergren opening the session for #AYA and #childhoodcancer with @David_M_Riedl and @MariaRothmund Looking forward to the EORTC PROMs to come! #EORTC_QLG_Sept21
🚨Job Alert! Open position Senior Programm-ManagerIn mit Schwerpunkt „Public and Patient Involvement and Engagement“❗️40 Wochenstunden bei uns in Wien. #PPIE #PPI #MedTwitter ois.lbg.ac.at/about-us/news/…
GIMEMA researchers investigated if open-label trials favor the experimental treatment more than blinded trials. Findings provide novel evidence-based data that support the validity of PRO results from open-label cancer RCTs. @OUPAcademic Read it here: academic.oup.com/jnci/advance-a…
Vivli will waive data contribution fees for academic researchers located in LMIC countries. Learn more here: vivli.org/about/share-da…
🎉We are a #FallingWallsEngage finalist!🥳We were selected with our Ideenbox, that involves patients and citizens in finding health research questions. One step closer to the #ScienceBreakthrough of the Year which will be celebrated at the @Falling_Walls conference in November🤞
🚨Job Alert! Open position Projekt-ManagerIn Schwerpunkt „Public and Patient Involvement and Engagement“❗️40 Wochenstunden, im Team mit @RaphaelaKaisler, bei uns in Wien. #PPIE #PPI ppie.lbg.ac.at/about/news/ope…
Disruption of treatment, personal safety and mental well-being were some patients' main concerns during the #COVID19 pandemic. Learn more in our Survey Report ➡️eu-patient.eu/news/latest-ep…
📢Gemeinsam #ForschenStattFaken: Wir brauchen deinen Beitrag zur Forschung! Welches Problem zum Thema #Gesundheit soll die Forschung lösen❓ Schicke uns dein Gesundheitsproblem hier 👉ww2.unipark.de/uc/Ideenbox/ #MedTwitter
@EORTC_QLG is looking for a Project Officer for Grant Management with an expertise in #Psychology/Quality of Life #research 🧐Check the job offer: ow.ly/b5e050EJEEZ #CancerResearch #Job
Gemeinsam #forschenstattfaken: Welches Problem zum Thema #Gesundheit soll die Forschung lösen❓Wir suchen Gesundheitsprobleme von Bürger*innen, z.B. (aber nicht ausschließlich) im Bereich Gesundheitsprävention: #Ernaehrung, #Sport, #vorsorge etc.👉ww2.unipark.de/uc/Ideenbox
Dying is a diagnosis too Recognize when a patient is dying Have open conversations-helps pts/families better prepare, feel involved Understand pt’s values, goals, preferences- involved in decision making - to ensure care/interventions is appropriate, in line w/ their wishes
A must-read for every oncologist. bmj.com/content/373/bm…
Sletheau @Sletheau138078
5 Followers 399 Following "Your body is your most valuable asset. Treat it well, stay active, and enjoy the rewards of a fit and healthy life."
Sikhululiwe Ngwenya @NgwenyaSku
4K Followers 4K Following Medical Doctor|Entrepreneur|Digital Health|Health Systems Researcher|Cancer Blogger
EORTC Quality of Life... @EORTC_QLG
1K Followers 896 Following The mission of the @EORTC QLG is to develop measures of PRO in #cancer, incl. #HRQoL, and promote and coordinate studies concerning the #QoL of cancer patients.
Micha Pilz @MJPilz
54 Followers 371 Following Wir suchen immer nach Einhörnern, und dabei haben wir doch Nashörner
JuanC Quijano-Campos @JCQuijanoCampos
619 Followers 1K Following Clinical Research Fellow (@KingsNMPC) and Honorary Clinical Research Fellow (@NHSBartsHealth & @RoyalPapworth) | Nurse | All views my own
Samantha Cruz @samsamcr
299 Followers 445 Following Research fellow @CPROR_UoB | PhD | PROs | University of Birmingham | Mexican 🇲🇽
PROMISHealthOrg @PromisHealth
142 Followers 367 Following PROMIS measures bring the patient's voice to healthcare.
COA Katja (Outcomes S... @CoaKatja
127 Followers 648 Following Board Director @ ISPOR, Kielo Research VP, Dr for Psychology, Master of Business Administration (Open)
Dr Anita Slade💙 @docsladea
305 Followers 866 Following ITM Research Fellow, Institute for Translational Medicine & Centre Patient Reported Outcomes Research, University of Birmingham 💙
Living with Myeloma @MyelomaStudy
358 Followers 2K Following What is important to people living with myeloma in Europe after the first line of treatment: University of Stirling & @MyelomaEurope https://t.co/V63vmkbIp0
Dr Julia Lai-Kwon @JuliaLaiKwon
797 Followers 441 Following Medical Oncologist, Senior Research Fellow @PeterMacCC ex @MelanomaAus @royalmarsdenNHS @ICR_London | PROs, QOL, survivorship | Dragon boater, cyclist
Alexandra Mitchell @alex_m_mitchell
2K Followers 4K Following PhD, RD | Diet for ileostomy | Prehab | Research interests: GI disorders, surgery, critical care #Dietitian #AHP #AcademicMentalHealth 🌍🌌🏑🐕 Own views
Yuichiro Kikawa, MD, ... @u1rokikawa
691 Followers 443 Following Breast Oncologist / Kansai Medical University / QOL researcher / father of two kids / born in Tokushima / live in Kobe city / Love baseball / Orix Buffaloes
Martin Eichler @ma_eichler
79 Followers 171 Following Epidemiology. HRQoL Research. #sarcoma #metascience #social_epi. NCT Dresden @[email protected]
Fondazione GIMEMA @FGIMEMA
553 Followers 177 Following Gruppo Italiano Malattie EMatologiche dell'Adulto
CRG-Haematology @CRGHaem
2K Followers 5K Following Haematology Clinical Research Group at Cardiff&Vale UHB, working together to share excellence and improve outcomes.
Davidmr @David_M_Riedl
96 Followers 207 Following Research Fellow at the Medical University of Innsbruck // Principal Investigator EORTC QLG kids project // 🏳️🌈 // 💉💉💉💉
Massimo Di Maio @MassimoDiMaio75
3K Followers 3K Following Medical oncologist at Molinette Hospital, Turin. Professor of Medical Oncology at University of Turin. AIOM president #cancer #QoL #PROs
HealthMeasures @_HealthMeasures
606 Followers 319 Following HealthMeasures consists of PROMIS®, Neuro-QoL, ASCQ-Me®, and NIH Toolbox®: precise & flexible measures that assess physical, mental, & social health & function
LBG OIS Center @OIS_Center
1K Followers 725 Following The Open Innovation in Science Center at @LBG_research unlocks novelty, efficiency, and impact by involving stakeholders in scientific research.
Tan P. Pham, MPH MS P... @TanPPham
130 Followers 373 Following #patientreportedoutcomes #Scientist #Biostatistican #Nerdy Professional by day, Professional #Nerd by night
Eric Low @EricLow71
813 Followers 990 Following
aida santaolalla @AidaSantaolalla
239 Followers 954 Following Senior Epidemiologist / Data scientist @TOUR_KCL & @KordastiL at @KCLcancer_pharm| Research and Data passionate | European in UK 🌍 | Partner, Mum | She/Her
Lisa Kennedy Sheldon @lisaksheldon
2K Followers 3K Following Nurse - PhD educator - career of service. Thoughtful leader developing affordable solutions to promote health and education. Wife, mom x4, grandmother
Takuhiro Yamaguchi @TakuhiroBiostat
106 Followers 562 Following Clinical Research Methodologist in Japan; Biostatistics, Data Driven, QMS, COA, Entertainment-Based Medicine; しがない統計家☘️
Lori Frank @LoriBethFrank
1K Followers 4K Following President, Women’s Health Access Matters (WHAM) @WHAMnow. @loribfrank/Threads
howe @howe57393511
0 Followers 74 Following
PROMIS @promisNIH
2K Followers 541 Following PROMIS® is a set of person-centered measures that evaluates and monitors physical, mental, and social health in adults and children.
Zan Lofgren @zlofgren1
22 Followers 115 Following
Sydney Office of Qual... @SydneyQOLO
175 Followers 31 Following SOQOL aims to optimize use of patient-reported outcomes in clinical trials & routine care ensuring the patient perspective is part of research & decision-making
IMI_SISAQOL @sisaqol
251 Followers 114 Following Setting International Standards in Analysing Patient Reported Outcomes and Quality of Life Endpoints in Cancer Clinical Trials
My Clinical Outcomes @MyClinOutcomes
3K Followers 4K Following Real-time patient #outcomes platform for routine clinical practice. @ICHOM_ORG @PHIN_UK. CEO @t1mwilliams. Since 2011. https://t.co/ngJAhYdCaq #VBHC #PROMs
christopher courtois @mofeur
38 Followers 169 Following
Mel Calvert @drmelcalvert
1K Followers 445 Following Professor Outcomes Methodology, Director @CPROR_UoB & BHP Centre Regulatory Science & Innovation #NIHR Senior Investigator Passionate #PROs #CRSI #spiritAI #PPI
Ludwig Boltzmann Gese... @LBG_research
814 Followers 610 Following Die LBG ist eine Forschungseinrichtung mit thematischen Schwerpunkten in der Medizin, den Life Sciences sowie den Geistes-, Sozial- und Kulturwissenschaften.
Precision Medicine at... @pmg_flinders
294 Followers 827 Following Addressing the challenges of getting the right dose of the right medicine to optimally treat cancer.
Sunil Shrestha, PhD @drsunilshrestha
486 Followers 2K Following Father; Pain Scientist; Clinical Researcher; Oncology Clinical Pharmacist; Academician; Photographer; Nepal
Kea Turner @TurnerKea
448 Followers 1K Following Cancer advocate and Associate Professor @UNCSON| #ImpSci | #SupportiveCare | Cancer Care Delivery | Views are my own
EORTC QLG Early Caree... @EORTC_QLG_ECI
278 Followers 278 Following Network of early career investigators involved in the EORTC Quality of Life Group | Views are not those of the EORTC QLG | This week handled by @
Vivli @VivliCenter
911 Followers 2K Following We are an independent non-profit whose mission is to advance human health through global clinical research data sharing. Active updating paused as of Feb 2025.
CHES @esdches
223 Followers 493 Following ESD provides software for electronic patient-reported outcome assessment. Follow our updates on https://t.co/uHj2oN8pAf
Angela M. Stover, PhD @Angela_M_Stover
693 Followers 2K Following #patientreportedoutcomes (PROs) and #impsci researcher. Opinions are my own; facts are just facts. #steelersfan #goheels #ISOQOL #CPSIG #GenX #FirstGen
Kate Absolom @DrKateAbsolom
739 Followers 838 Following Applied health research | utilising patient reported outcome data (PROMs) @UniversityLeeds | @POGWeb | @hsr_leeds | @NIHR_RSS | @Methodology_Inc | @MRCNIHRTMRP
Rasmus Blechingberg F... @Rbfriis
452 Followers 943 Following MD, Oncologist, PhD Find me on Bluesky https://t.co/hkEPUtmyHh
EviMaira @EviMaira
2 Followers 52 Following
Jens Lehmann @JLehmann_IBK
293 Followers 530 Following early career investigator @imed_tweets | current chair of ECI group at @EORTC_QLG & EORTC board member patient-reported outcomes | ePRO | cancer |
Jammbe Musoro @Jammbe_Musoro
142 Followers 114 Following Senior Statistician/expert in quality of life, PhD, @EORTC
Journal of Cancer Sur... @jcansurv
4K Followers 4K Following Founder & Editor in Chief: Michael Feuerstein PhD MPH; Deputy editor @DrN_cancerpcp. #survonc Social media editor @maryam_lustberg
EORTC @EORTC
16K Followers 701 Following European Organisation for #Research and #Treatment of #Cancer defines better treatments for all cancer #patients to prolong survival and improve quality of life
EORTC Quality of Life... @EORTC_QLG
1K Followers 896 Following The mission of the @EORTC QLG is to develop measures of PRO in #cancer, incl. #HRQoL, and promote and coordinate studies concerning the #QoL of cancer patients.
VJHemOnc @VJHemOnc
22K Followers 5K Following The Video Journal of Hematology & Hematological Oncology is dedicated to providing up-to-date information & international expertise
Supporting children i... @lbgvillagechild
142 Followers 217 Following Improving identification of 'invisible' children and enhancing child focused (in)formal support #COPMI https://t.co/QSR245QutS @OIS_Center @imed_tweets #MentalHealth
Davidmr @David_M_Riedl
96 Followers 207 Following Research Fellow at the Medical University of Innsbruck // Principal Investigator EORTC QLG kids project // 🏳️🌈 // 💉💉💉💉
Fondazione GIMEMA @FGIMEMA
553 Followers 177 Following Gruppo Italiano Malattie EMatologiche dell'Adulto
OeAD Citizen Science @_CitizenScience
2K Followers 798 Following Informations-, Beratungs- & Servicestelle für #CitizenScience im OeAD --------------- Information, Advisory & Service Center for #CitizenScience at the OeAD
European Citizen Scie... @EUCitSciProject
6K Followers 0 Following THIS ACCOUNT IS NOT ACTIVE. FOLLOW US ON BLUESKY (@ecs.ngo) AND LINKEDIN (@eucitsci). The European #CitizenScience #project is funded by the European.
Massimo Di Maio @MassimoDiMaio75
3K Followers 3K Following Medical oncologist at Molinette Hospital, Turin. Professor of Medical Oncology at University of Turin. AIOM president #cancer #QoL #PROs
HealthMeasures @_HealthMeasures
606 Followers 319 Following HealthMeasures consists of PROMIS®, Neuro-QoL, ASCQ-Me®, and NIH Toolbox®: precise & flexible measures that assess physical, mental, & social health & function
Lori Frank @LoriBethFrank
1K Followers 4K Following President, Women’s Health Access Matters (WHAM) @WHAMnow. @loribfrank/Threads
b @ReeveBryce
92 Followers 31 Following
Takuhiro Yamaguchi @TakuhiroBiostat
106 Followers 562 Following Clinical Research Methodologist in Japan; Biostatistics, Data Driven, QMS, COA, Entertainment-Based Medicine; しがない統計家☘️
PROMIS @promisNIH
2K Followers 541 Following PROMIS® is a set of person-centered measures that evaluates and monitors physical, mental, and social health in adults and children.
Citizen Science Netwo... @CSAustria
2K Followers 634 Following Österreich forscht. We left "X", for updates please follow us on LinkedIn: https://t.co/zdqN6ypKD0
Sydney Office of Qual... @SydneyQOLO
175 Followers 31 Following SOQOL aims to optimize use of patient-reported outcomes in clinical trials & routine care ensuring the patient perspective is part of research & decision-making
LBG OIS Center @OIS_Center
1K Followers 725 Following The Open Innovation in Science Center at @LBG_research unlocks novelty, efficiency, and impact by involving stakeholders in scientific research.
IMI_SISAQOL @sisaqol
251 Followers 114 Following Setting International Standards in Analysing Patient Reported Outcomes and Quality of Life Endpoints in Cancer Clinical Trials
christopher courtois @mofeur
38 Followers 169 Following
Precision Medicine at... @pmg_flinders
294 Followers 827 Following Addressing the challenges of getting the right dose of the right medicine to optimally treat cancer.
My Clinical Outcomes @MyClinOutcomes
3K Followers 4K Following Real-time patient #outcomes platform for routine clinical practice. @ICHOM_ORG @PHIN_UK. CEO @t1mwilliams. Since 2011. https://t.co/ngJAhYdCaq #VBHC #PROMs
Mel Calvert @drmelcalvert
1K Followers 445 Following Professor Outcomes Methodology, Director @CPROR_UoB & BHP Centre Regulatory Science & Innovation #NIHR Senior Investigator Passionate #PROs #CRSI #spiritAI #PPI
Elke Rammant @ElkeRammant
208 Followers 191 Following PROMs, symptom clusters, exercise- and psycho-oncology, quality of life // Ghent University & King’s College London
Sylvie Lambert @sylviedlambert1
1K Followers 1K Following Canada Research Chair; Professor, @mcgcgillu @McgillNursing; Scientist, St. Mary's Research Centre; develop and evaluate programs for #caregivers, mom of #twins
Critical Path Institu... @CPathInstitute
1K Followers 177 Following C-Path leads collaborations that accelerate drug development, advancing better treatment for people worldwide.
BPOS UK @BPOSUK
2K Followers 1K Following British Psychosocial Oncology Society is a multi-disciplinary organisation aiming to advance education & research in psychosocial oncology. Plus @BPOS_students
Kea Turner @TurnerKea
448 Followers 1K Following Cancer advocate and Associate Professor @UNCSON| #ImpSci | #SupportiveCare | Cancer Care Delivery | Views are my own
Eric Low @EricLow71
813 Followers 990 Following
International Society... @ISQOLS_org
1K Followers 3K Following The International Society for Quality-of-Life Studies (ISQOLS) promotes research in the field of quality-of-Life, happiness, and wellbeing studies.
PRO News @PRONews2
146 Followers 11 Following Tweeting about Patient Reported Outcomes news and opportunities from industry and academia
@prom_projects @ProjectsProm
93 Followers 127 Following PROM Projects focuses on the transparent publishing of quality of care outcomes driven through innovative medical approaches, including using PROMs
E-Health Psycho-Oncol... @EHEALTH_PSYONCO
536 Followers 306 Following Special interest group of researchers, clinicians and everyone who is interested in exploring & advancing #ehealth #mhealth in #psychooncology across the globe
Hospital del Mar @hospitaldelmar
28K Followers 2K Following Som una institució referent d'excel·lència clínica, capdavantera en recerca i docència, valorats per la sensibilitat en la cura de les persones. @hmar_research
HMar Research Institu... @HMar_research
10K Followers 2K Following We are the Hospital de Mar Research Institute. An institution dedicated to biomedical research. We are @hospitaldelmar, @icerca, and located at @the_prbb.
Ethan Basch @EthanBasch1
2K Followers 115 Following Oncologist, Cancer Outcomes Researcher, Bass Player
Kate Absolom @DrKateAbsolom
739 Followers 838 Following Applied health research | utilising patient reported outcome data (PROMs) @UniversityLeeds | @POGWeb | @hsr_leeds | @NIHR_RSS | @Methodology_Inc | @MRCNIHRTMRP
Angela M. Stover, PhD @Angela_M_Stover
693 Followers 2K Following #patientreportedoutcomes (PROs) and #impsci researcher. Opinions are my own; facts are just facts. #steelersfan #goheels #ISOQOL #CPSIG #GenX #FirstGen
European Research Cou... @ERC_Research
156K Followers 534 Following European Research Council, set up by the EU, funds top researchers of any nationality, helping them pursue ideas at the frontiers of knowledge. 🦋https://t.co/Y9s8R2t8Qr.
WECAN @WECANadvocate
892 Followers 252 Following WECAN = Workgroup of European Cancer patient Advocacy Networks
Samantha Sodergren @SCSodergren
414 Followers 309 Following Senior Research Fellow, Chartered Health Psychologist, University of Southampton, EORTC Quality of Life Group Member.
Vivli @VivliCenter
911 Followers 2K Following We are an independent non-profit whose mission is to advance human health through global clinical research data sharing. Active updating paused as of Feb 2025.
IKNL @IKNL
4K Followers 4K Following Integraal Kankercentrum Nederland | Netherlands comprehensive cancer organisation | Reducing the impact of cancer with data | Follow us on LinkedIn.
Rasmus Blechingberg F... @Rbfriis
452 Followers 943 Following MD, Oncologist, PhD Find me on Bluesky https://t.co/hkEPUtmyHh
CHES @esdches
223 Followers 493 Following ESD provides software for electronic patient-reported outcome assessment. Follow our updates on https://t.co/uHj2oN8pAf
Olga Husson @OlgaHusson
917 Followers 875 Following Senior researcher - Health-Related Quality of Life - Adolescent & Young Adult (AYA) Oncology - Rare Cancers - Healthcare Innovation - @NKI_nl, @ErasmusMCPH
drkimcocks @drkimcocks
147 Followers 114 Following Medical statistician and patient-reported outcome specialist








