NephCure @nephcure

Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure. nephcure.org Remote Joined June 2020

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NephCure @nephcure

4 weeks ago

The New Era Act is moving in Congress—and patient voices are needed now. Travel assistance is now available for Rare Kidneys On The Hill Day. Apply & register 👉 nephcure.org/get-involved/e…

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Join us for Rare Kidneys on the Hill Day where patients, caregivers, physicians & researchers come together to raise awareness for RKD and make their voices heard by Members of Congress. Learn more & register: nephcure.org/get-involved/e…

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NephCure @nephcure

2 months ago

Did you know NephCure is home to the largest community of rare kidney disease patients? 💙 Join us, connect with others, and find an event near you: nephcure.org/get-involved/e… #RareKidneyDisease #NephCure #GlomerularDisease #NephroticSyndrome

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NephCure @nephcure

2 months ago

This APOL1 Awareness Day, shape the future of APOL1 care. Sign the interest form or share this with someone who could benefit from this experience: tinyurl.com/yca5mcey

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NephCure @nephcure

2 months ago

The brilliant minds behind NephCure-funded research are driving breakthroughs in rare, protein-spilling kidney diseases—unraveling complexities and paving the way for new treatments. Meet the researchers making it happen: nephcure.org/about/our-impa…

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NephCure @nephcure

2 months ago

Get involved with the IgAN Alliance — join our programs, collaborate on initiatives, and help advance research and patient care. Learn more about our progress in the topline summary of Workshop #1 at IgANAlliance.org.

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NephCure @nephcure

2 months ago

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NephCure @nephcure

3 months ago

Living with IgAN often means carrying a silent burden. Over the past year, we built the IgAN Alliance to provide timely answers, informed care, and community. Take a look at our progress in improving care and join the Alliance at tinyurl.com/4bwkpu68.

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NephCure @nephcure

3 months ago

Join us July 22nd - July 23rd in Washington DC to use your voice for change on Capital Hill! Click here to register: nephcure.org/get-involved/e…

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NephCure @nephcure

3 months ago

Join us for Rare Kidneys Connect: Nephrotic Syndrome Family Education Day on April 11 from 12:30pm - 4:30pm in Philadelphia! Click to register: nephcure.org/es/evento/rare…

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NephCure @nephcure

3 months ago

Thank you for making Kidney Month so impactful! 💚 Your voices helped raise awareness for rare, protein‑spilling kidney diseases and highlighted why equitable access to expert care matters. Kidney Month may be ending, but our work as a community continues!

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NephCure @nephcure

3 months ago

Rare kidney disease deserves to be seen, and this Kidney Month, you helped make that happen. 💚

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NephCure @nephcure

3 months ago

Your stories of courage and perseverance inspire us—and give hope to everyone impacted by rare kidney (glomerular) disease. Explore our full collection of patient stories: nephcure.org/support/patien…

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NephCure @nephcure

3 months ago

Behind every breakthrough in rare kidney disease is a researcher who chose to push research forward. We’re grateful for every NephCure‑funded researcher helping our community move toward better answers and better care. 💚

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NephCure @nephcure

4 months ago

This Kidney Month, we’re highlighting the impact our community is driving: research investments, FDA‑approved treatments, global initiatives, and 60+ clinical trials. These numbers tell a story of progress and advocacy. We’re proud of how far we’ve come, and what’s next.

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NephCure @nephcure

4 months ago

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NephCure @nephcure

4 months ago

A new era for rare kidney disease care begins. NephCure’s new mission is clear: to ensure equitable access to expert care and emerging treatments for every person living with a rare, protein‑spilling kidney disease. Because progress means nothing if patients can’t reach it.

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NephCure @nephcure

4 months ago

March is National Kidney Month, it is our moment to come together as a community and shine a light on rare kidney disease. Visit our Kidney Month webpage on nephcure.org/kidney-month-2… where you will find ways to get involved and special edition merch! Stay tuned! 💚

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NephCure @nephcure

4 months ago

Navigating the kidney transplant process can be overwhelming. We’ve created an easy-to-understand guide to help patients know what to expect and feel more prepared. Explore the resource here: nephcure.org/intro-to-rkd/e…