Dr Hng + Friends @DoctorwithME
Author of "Doctor with M.E." Founder of Doctors with M.E. (DwME), international professional association. Views our own (me + friends) not DwME. me-pedia.org/wiki/Robin_Bro… England, United Kingdom Joined July 2017-
Tweets1K
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Followers2K
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Following1K
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Likes623
RIGHTS AND OBLIGATIONS IN ME/CFS Making expected standards clear - it has been done before. See the SEND Code of Practice, which is also relevant to children with #MECFS and #LongCovid #LongCovidKids. assets.publishing.service.gov.uk/government/upl…
“We propose a simple solution which explicitly removes the perception of optionality in meeting basic standards in the care and service of ME/#CFS patients. It takes the form of official guidance called ‘Rights and Obligations in ME/CFS’” #MEcfs #PwME #MyalgicEncephalomyelitis
Rights and Obligations in ME/CFS: Overcoming normalised disregard for standards doctorswith.me/rights-and-obl…
#ME patient rights 👇 “A patient complains of life-changing, severe fatigue along with multiple perplexing symptoms. Her doctor does not believe in ME so diagnoses her with anxiety / Functional Neurological Disorder / other without investigation”
Rights and Obligations in ME/CFS: Overcoming normalised disregard for standards doctorswith.me/rights-and-obl…
@quasar9uk @DoctorsWithME Sorry fixed now. ME brain. 🫤
#pwME: If you want health and social services to know what their obligations are towards you, be sure to mention @DoctorsWithME's guidance on RIGHTS AND OBLIGATIONS IN #MECFS when the ME/CFS Delivery Plan in the UK is open for wider engagement. #LongCovid doctorswith.me/rights-and-obl…
@Troevs @DoctorsWithME Some time in the next few weeks or months I think. A chance for other parties (e.g. patient charities) to input into the process.
@Troevs @DoctorsWithME DHSC is drawing up a draft ME/CFS delivery plan, and plan wider engagement so more parties can input later. If you like the sound of our proposed guidance, just say you want rights and obligations in ME/CFS to be made explicit, or link to our page on this.
@DoctorsWithME proposes official guidance on Rights and Obligations in ME/CFS for the UK. #MECFS #LongCovidKids #LongCovid doctorswith.me/rights-and-obl…
@shellchat @SurreWerre @DoctorsWithME @DHSCgovuk Do our best. 😊
Announcing: @DoctorsWithME has joined @DHSCgovuk Attitudes and Education working group, part of their ME/CFS Delivery Plan. Also taking part in their workshops on healthcare, social care, welfare, children & young people. Working hard for #MECFS #LongCovid.
@Naylor007 @DoctorsWithME @DHSCgovuk Doing our best. 🙂
@kayemclaren @DoctorsWithME @DHSCgovuk Thank you. We will do our best to get patients what they deserve. 🙂 #MECFS #LongCovid #LongCovidKids
@quasar9uk @DoctorsWithME @DHSCgovuk Noted.
@thegodofpleasur Very difficult for sick and penniless patients. That's why we are pushing for @DHSCgovuk to make these obligations and consequences explicit. Get the whole system to understand the legal risks not patients to fight individual cases for basic rights. #Compliance #MECFS #LongCovid
1/ #Compliance approach in #MECFS. What does this mean? Make explicit Rights, Obligations, Consequences (risks+liabilities). Map to relevant laws and policies. Easy for managers to understand what they must provide. Patients can point to rights. @DHSCgovuk
@VanessaFuchsArt Exactly. And we are trying to get @DHSCgovuk to lay it all out so people can't just make it up anymore. Rules DO apply. Obligations = duties. Practitioners = doctors and other people who are supposed to care for the patients. #MECFS #LongCovid
@lmrlmrlmr @DoctorsWithME @DHSCgovuk You're welcome. 😊
@PhillippaHolla1 @DoctorsWithME @DHSCgovuk Aw I'm glad to hear that! 😊
Tom Kindlon @TomKindlon
15K Followers 620 Following With ME 37 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Dan Wyke 🦠➡️�... @Dan_Wyke
14K Followers 6K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Anil van der Zee © @AnilvanderZee
10K Followers 889 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Lizzy H @hopefullizzy
8K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 4K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine ONLY POSTING ON UPSCROLLED NOW
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
ME Association @MEAssociation
19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Dr Keith Geraghty @keithgeraghty
8K Followers 495 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based researcher & chartered psychologist |@FBMH_UoM, @PrimaryCareMcr
Sibylle Dahrendorf �... @sibylle_berlin
7K Followers 3K Following ex-filmmaker, home & bedbound due to complex chronic illnesses, mcas, cci, pots, sfn, fq & flagyl toxicity, longlyme, longpathogens, longsomething, longlist
Jo @cfs_jo
4K Followers 2K Following ME & POTS, Still me. Sense of humour intact. Proud “Anti-Recovery Activist” (sarcasm). “Privileged senior adult child” - Brad
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Paula Knight @Paula_JKnight
6K Followers 3K Following Author Illustrator Comics Creator THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Disabled. Bedridden 8yr v severe M.E. IG: @paulajkstudio
Long Covid Advocacy �... @LongCovidAdvoc
15K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #cripademia book club. 🛍️ https://t.co/8JlRWqy8Id
Duracell Dan (Moore) @Talmandaniel
5K Followers 3K Following Novice Rapper, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Dr Nicola Clague-Bake... @ClagueNjc36
4K Followers 2K Following PT researcher/Senior Lect @LivUni co-founder @physiosforme | PhD | neuro rehab/ex physiology/ME/Longcovid/EDI/all views my own she/her
#MEActionMaryland @MEActMaryland
594 Followers 2K Following Maryland Chapter of #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in the DMV/MD
Christian Michael @ChristianMmfk
132 Followers 1K Following
Christine Page @Chrisp370
1 Followers 57 Following
isaac 𖤓 @eosphorus07
895 Followers 1K Following immaterial boy ⋆ he/they ⋆ 24y ⋆ venusian ♒︎ moon ⋆ anarca comuna ☭⋆ #EndThePandemic & eugenics ⋆ mostly bedbound since 07/25
Joseph idrissa Kamara @idrissa_jo9587
0 Followers 6 Following Work like a slave and live like a king 🤴
S @S1m681155011
166 Followers 747 Following
AliceVirginia @uZE49gHg0Mhxd2
37 Followers 1K Following
KarenDierser @76QMm94Hn50G68
43 Followers 2K Following
Rachel @rachelleese84
587 Followers 1K Following Londoner, wife, Mum, pwME (myalgic encephalomyelitis). Lover of wine 🍷.
Macy Mitchell @MitchellMa99659
0 Followers 44 Following Join us for a free trial of 2 selected stock targets, only Europe friends with stock accounts are welcome
Shiturez @Shiturez3IeE
25 Followers 3K Following
Amos Rono @AmosRon91452894
1 Followers 40 Following
David F Marks @DavidFMark
5K Followers 4K Following Author #science #wildlife #nature #photography #homeostasis #GeneralTheoryofBehaviour #psychology. Follows and RTs are not endorsements.
Sunshine14 @Sunshine1474073
1 Followers 32 Following
Indrajeet Sahoo @ISahu74142
232 Followers 7K Following Cyber Security Analyst || Cisco Certified Network Associate (CCNA) ||Certified Ethical Hacker (CEH) ||
Thoanawhair @ThoanawhairWgJ
21 Followers 2K Following
Dr Clarke Gostelow @clarkegostelow
53 Followers 165 Following Non-binary disabled Doctor • They/them
Maliha Abidi @AbidiMalih5909
6 Followers 158 Following Made to be an achiever of extraordinary greatness,Author/artist and illustrator/Activist/Malala Fund & Peace Corporation/UN Women Aid/The Story of mental health
Susan greenwood @Susangreen13366
1 Followers 28 Following
#NotJustFatigue @njfatigue
1K Followers 724 Following We’re a bipartisan 501(c)(3) sounding the alarm on ME/CFS with digestible, creative content, and advocating for people with the disease. This is #NotJustFatigue
G R A C E 🌸 @withgrace___
86 Followers 260 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Arthur @unreal_arthur
430 Followers 2K Following ME Patient-ly Waiting for Biomedical Research | Volunteer @WeCrunchME #GreatestMEdicalScandal https://t.co/9VY3sk6fK2
Elizabeth Ansell @elizansell
875 Followers 2K Following Founder + Executive Director @njfatigue. Previously at Showtime and ABC News, among other places. Quit job due to #MECFS. This is #NotJustFatigue.
Slaneigh @Slaneigh125766
19 Followers 1K Following
kunstvanherstel @laubelgium
182 Followers 451 Following
Susan Tyler @sussanfeathers
23 Followers 169 Following
Terry Fortesque @FortesqueTerry
436 Followers 1K Following
It'sMe @MECFSLongCov
156 Followers 743 Following Sufferer of ME/CFS since a bout of EBV 7 years ago.
Bill Clayton @clanman3
1K Followers 797 Following Caring for the York ME Community & Accessibility in York. The Word Doodle Trilogy is out now on Amazon ! (Just a bit of ‘poetry’)! https://t.co/V3C9QHZkuc
Stokes Croft Book Gro... @SCBookGroup
58 Followers 432 Following We meet at 7pm on the first Monday of the month at the Social on Cheltenham Road. Come and join us to chat about books, life, love & your favourite authors.
Faithless @FaithOxenbridge
3K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.
S Engel @77ElektrikDiva
0 Followers 6 Following
C @savingmeredith
1K Followers 310 Following building a movement to save my sister. opinions are my own
Keri @KerimclainKeri
39 Followers 526 Following
CranioCervicalInstabi... @CranioUnstable
602 Followers 3K Following My entire adult life has been a daily struggle with #cervicalspine instabi(ity symptoms, and now totally disabling and untreated #CCI and #MECFS. Please help!
Susan Fairlie Hall @FairlieHall
1K Followers 3K Following Wanting there to be more recognition for the impact ME/CFS has on peoples lives, hoping that better support will be provided.
LongCovidSpain @LongCovid_Spain
1K Followers 2K Following Dando voz a los pacientes e investigadores de #CovidPersistente #LongCovid Encuentra tu asociacion mas cercana en el link ⬇️
Steve Young @4SteveYoung
8 Followers 743 Following BSc (Hons) Social Psychology Student. @openuniversity. Veteran, Lived Experience, Trauma, Mental Health, PTSD. Musician, Amateur Artist. All tweets my own.
Nicole Lange🇨🇦 @NicoleL42759817
994 Followers 2K Following Grandma to pups Grizzley & Cedar, and Scruffy, animal lover, a positive person. Can’t have my own pets due to allergies, ME/CFS, fibro, POTS, MCAS…
Isthar_22 @angela2paloma2
74 Followers 746 Following
Debbie @mistydeb_1
309 Followers 307 Following Love reading and creating when I can. Life with ME is challenging.
Larry Weis @LarryWeis7
1K Followers 2K Following #ME/CFS,#SFN,#Dysautonomia,NASCAR,Classic Rock & Country Music Owner-Commercial Insurance Agency
Sinéad @spoonless_me
2K Followers 750 Following dog lover • plant mad • software engineer • chronically ill • #PostVac induced #Polymyositis #SFN #POTS #MCAS #MECFS #LongCovid
Joan McParland MBE-Ne... @JoanMcparland
550 Followers 506 Following 1999 Sudden-onset-virally induced Myalgic Encephalomyelitis. IT instantly removed ability to care for my family, took career too. Life remains mostly horizontal
Bhupesh K Prusty @BhupeshPrusty
16K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Janet Dafoe @JanetDafoe
17K Followers 222 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Tom Kindlon @TomKindlon
15K Followers 620 Following With ME 37 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Dan Wyke 🦠➡️�... @Dan_Wyke
14K Followers 6K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Sten Helmfrid 🇺�... @StenHelmfrid
8K Followers 189 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Anil van der Zee © @AnilvanderZee
10K Followers 889 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
ME/CFS News @MECFSNews
14K Followers 673 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Lizzy H @hopefullizzy
8K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Whitney Dafoe @DafoeWhitney
12K Followers 88 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 4K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine ONLY POSTING ON UPSCROLLED NOW
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
ME Association @MEAssociation
19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Dr Keith Geraghty @keithgeraghty
8K Followers 495 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based researcher & chartered psychologist |@FBMH_UoM, @PrimaryCareMcr
#MEAction Network @MEActNet
19K Followers 2K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Nina E. Steinkopf @Nina_Steinkopf
2K Followers 1K Following Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. 🇳🇴🏳️🌈🇵🇸😷 Anti-genocide
Elisabeth Klaar @lammas_leaves
2K Followers 6K Following Marketing for SMEs and NGOs. Mentoring & Tuition: WordPress, Marketing. Also @chronicliving1 - project built with WordPress
Katie's on the patio @SockFoam
1K Followers 1K Following She/her. Chronically ill with ME and POTS, Blogger on Substack.
Darren Brown OBE @darrenabrown
9K Followers 5K Following Physiotherapist | OBE 2024 | @thecsp Fellow | @HIVandRehab Elisse Zack Award | @WorldPhysio1951 International Practice Award | @LongCOVIDPhysio past Chair | 🦋
Clare Daly @clarejdaly
5K Followers 1K Following Year 6 of #LongCovid (2020) | #MECFS (1993). (occasionally) Support @visible_health
Eric Feigl-Ding @DrEricDing
756K Followers 15K Following Health & economic warnings. Health policy, epidemiology & finance data. Faculty/Chair of Public Health @NECSI. Fmr @Harvard @JohnsHopkins. (backup @EricDingEpi)
Sarah Hughes @SHughesDr
798 Followers 877 Following
Georgia Elle @_memyselfandwhy
1K Followers 294 Following 26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs #pwme
Ravi Veriah Jacques @RaviHVJ
6K Followers 913 Following On a long twitter break | 2021 Schwarzman Scholar | @Stanfordhistory alum | Covid longhauler | Long Covid & ME/CFS Advocate 🇲🇾🌲✨🎻
Sajid Javid @sajidjavid
292K Followers 1K Following Rt Hon Sir Sajid Javid | Partner, Centricus Partners | Chair, Holocaust Memorial Day Trust | Former Chancellor of the Exchequer https://t.co/3aI2TLrHKC
Kevin Deans @DeansKevin
2K Followers 886 Following Chemical Pathologist - Clin Biochem, Obesity, Nutrition, Inherited Metabolic Diseases. Personal profile; all views my own. Tweets are not medical advice.
David Strain @DocStrain
2K Followers 556 Following Clinical Academic working with older adults, diabetes and sarcopenia. Affiliations with @ActionforME @BMA_Academics @ExeterMed
Terri Wilder @WildNycgirl
2K Followers 1K Following Reporter @BodyPROHIV @TheBodyDotCom Opinions mine. HIV, Long COVID19, & ME/CFS Activist. ME/CFS expert. I live it. Chair, #MEAction Minnesota
Prof Nisreen Alwan �... @Dr2NisreenAlwan
70K Followers 4K Following If u want to be free, be free. Public Health Prof MBE. My words=my PERSONAL views. RT≠endorse. [email protected],Threads:nisreen.a.alwan,bsky:nisreenalwan
Zeest Khan, MD @doctor_zeest
5K Followers 281 Following Physician recovering from Long Covid helping others do the same. Check out my podcast and newsletter. 🔗: https://t.co/AJNaCIPsRc
Dom @domsalisbury
1K Followers 1K Following Energetically compromised #pwME and patient advocate (when able) • Research scientist by trade • Interested in how we live • Open-minded but generally sceptical
Dr Kerry Smith @DrKerrySmith
4K Followers 266 Following Former NHS GP. Hit by Covid-19 pre lockdown March 2020. Long Covid advocate - LongCovidDoc on Insta and ambassador for @covidaidcharity.
Call For Change Austr... @australia_call
123 Followers 186 Following CALL FOR CHANGE for ME patients Australia Sign the petition: https://t.co/ek48zkwpap
@TheChronicCollaborat... @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Sara Meddings @SaraMeddings
1K Followers 1K Following Consultant @ImROC_comms and Trustee @peer_partners . Recently retired Consultant Clinical Psychologist @withoutstigma All tweets in a personal capacity
Millbrook Primary @MillbrookWigan_
1K Followers 58 Following A place where we aim all children and adults to Rise Above and Go Beyond to ensure they meet or exceed their potential.
NICE @NICEComms
237K Followers 1K Following Official feed of NICE - National Institute for Health and Care Excellence. We produce evidence-based health and social care guidance. Tweets by the comms team.
Nina A Tomei, MD @doctormom63
4K Followers 1K Following Life interrrupted by debilitating chronic illness. Surviving Not Living. Sick Not Tired. #MECFS We just want our lives back. Posts are not medical advice.
Muhammad Shafiq @DrMuShafiq
8 Followers 26 Following MBBS (KE ), DCP(PU), MPH(UHS) Clinical Pathologist , Blood Transfusion, Public Health Consultant
Lucinda Bateman @LBatemanMD
6K Followers 756 Following Physician determined to mainstream ME/CFS and FM into modern science and medicine
Peter Tennant has mov... @PWGTennant
15K Followers 2K Following Bluesky: https://t.co/zS7mSLkbTl - LinkedIn: https://t.co/MHOeaEThmP - Intro to Causal Inference Course: https://t.co/Sj6hfjjaIe
David F Marks @DavidFMark
5K Followers 4K Following Author #science #wildlife #nature #photography #homeostasis #GeneralTheoryofBehaviour #psychology. Follows and RTs are not endorsements.
Dr. Richard Ramyar �... @RRRR4tothe4
755 Followers 1K Following Strategy+CloudShepherd HistPol1st💚 ConstitutionalLaw FinEcon Cloud AIML FOSS Linux #MECFS Postdocing @DoctorsWithME Board #MyViews @[email protected]
European ME Coalition... @EMEC_advocacy
1K Followers 69 Following Advocacy organization for ME/CFS patients and their carers in Europe
Academy of Medical Sc... @acmedsci
33K Followers 1K Following Independent expert voice of biomedical and health research in the UK, fostering good health for all supported by the best research.
Allie Phillips @AnnRevereJwlry
593 Followers 540 Following
Massachusetts ME/CFS ... @MassMECFS
2K Followers 711 Following To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
Els Bakker @Tulipels
197 Followers 715 Following Farmer- Advocate #ME/CFS - Daughter with ME since age 14 (now 34) Associate producer UNRESTFILM Avid reader. Interest in politics, arts, ethics,philosophy etc
Steph ♿️💝🌹 @Homebird777
1K Followers 5K Following Mum of 3 teens #Disabled #AutonomicDysfunction #PWME #ME #HSD #CFS #Fibro #POTS #ChronicPain #Spoonie #Autoimmune #gobshite #sweary #love4life #fun #GTTO
Suzie Bird @musicsuzie
181 Followers 723 Following ME/CFS warrior: Proud mama; musicals geek; quirky bird; living life the best I can
Armin Schwarzbach @ArminLabs
2K Followers 2K Following Specialized #lymedisease #Borreliose #ticks #coinfections #tickbornediseases #EliSpot #Tickplex
DQJrememberME @DqJremember
136 Followers 361 Following A dauntless warrior using Twitter 2 raise awareness 4 @ME_intl @MECentraal & Injustice worldwide. DM or Private Account? I like to keep the initiative.
Gaia Tempest @gaia_tempest
173 Followers 2K Following Wending my way through life with chronic illnesses, a wicked sense of humour and an attachment to rainbows 😀 UK
PoTS UK @UKPoTS
7K Followers 3K Following A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.
Ody @OdyO11
3K Followers 4K Following Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @[email protected] 🌌 OdyOdy.b...
Katie Cupcake - Life ... @KClifewithME
2K Followers 1K Following 🥄Spoonie with ME, POTS & Fibro 🌍 Leeds 💙💛Leeds Knights Ice Hockey obsessed! @leedsknights 📸 Insta: https://t.co/4eXAbX18Ix (She/her)
MightyMermaid @MightyMermaid87
2K Followers 915 Following M.A. Early Childhood Education // #MECFS #SFN #Behandlungsfehler #ChronicPain #Hashimoto #Kinderschutz // [email protected] (she/her)
A Darkened Room @adarkenedroom
211 Followers 365 Following One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Annette Streich @annetteStreich9
834 Followers 2K Following ME/CFS , POTS and fibromyalgia . Love food , foreign films and my wee Siamese beasties .Once was witty now happy if I can form complete sentences 🤪












