Bill Clayton @clanman3
Caring for the York ME Community & Accessibility in York. The Word Doodle Trilogy is out now on Amazon ! (Just a bit of ‘poetry’)! https://t.co/V3C9QHZkuc York, England Joined November 2010-
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@reece_dinsdale Too much American influence which I hope won’t catch on. The hydration breaks have proved to be a nonsense too. Hopefully again won’t be repeated here, as might prove awkward on the BBC with no advertising breaks to sell……
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@reece_dinsdale A question for you please as the ideal person to ask I’m sure. So many programmes we see showing daytime indoor shots but there are always lamps or lights on inside the ‘house’. I can understand it’s a lighting issue, but is there no better way to light scenes?
Bill Clayton retweeted
Sometimes sports is about more than just the score. 🥺
Bill Clayton retweeted
Until now, there has not been a list of recommended UK Long COVID and ME doctors all in one place... so we decided to make one! lcmedata.org/ukdocs 🇬🇧 We painstakingly collated hundreds of comments from Reddit, Twitter, and group chats with only the most-rated doctors, pricing, and pros and cons from real patients. 25 doctors and clinics are listed, from NHS to private specialists, pharmacies for LDN and ketotifen, and even a link-out to @ChronicLiving1 for therapy options! This is a living document and will be continually updated. Suggestions and updates welcome!
Bill Clayton retweeted
A new study finds the dementia drug Donepezil helps treat Long COVID fatigue and depression. The virus triggers a protein that drops brain acetylcholine; Donepezil restores it to clear brain inflammation and symptoms. mainichi.jp/english/articl…
@reece_dinsdale They sound very much like the Trump voters I’ve seen interviewed……
@CufcOn They’ve bought the land Man City’s ground is on, so are going to flatten it and build a proper stadium !
Bill Clayton retweeted
The UK has 1.2m wheelchair users 1.5m people with intellectual impairments 3.5m people having cancer treatment 340,000 people registered blind &c, &c. Only 2.8m people get incapacity #benefits. Don't let politicians fool you that too many people are signed off work #Disability
@reece_dinsdale The simple things in life do tend to give so much pleasure. Just enjoyed a glass of tawny port to finish off the day. Lush !
@Marieda58304594 @RichCon81 @thomasgodfreyuk Too much misinformation being banded about by people we should be able to have belief and trust in. I really do wish there was a fact checking service that they had to use to scrutinise statements before they were allowed to be published.
Bill Clayton retweeted
@thomasgodfreyuk Hi Tom, I’m a welfare benefits advisor. I’ve written hundreds of PIP forms for severely disabled people. You cannot get PIP for anxiety alone. The threshold is too high. Why don’t you reach out to actual professionals who work in this area to get your facts before you print?
Bill Clayton retweeted
“These [Prevention of Future Deaths] reports make it clear that it’s not just a question of future improvement but a question of patient safety now. More deaths from ME must be prevented.” Baroness Scott of Needham opening the House of Lords debate on Severe #MECFS
Bill Clayton retweeted
“I was unable to leave the house for two years because I simply wasn’t strong enough to walk to the car.” Laura Hillenbrand author of Seabiscuit and Unbroken speaking about living with #MECFS in 2014.
Bill Clayton retweeted
Sadio Mane : "When I left Bambali, my hometown, I promised three things. Not to disappoint my parents, become a professional football player and return to my village to build a school." So far, he has: - Built a $693,000 hospital, - Built a $350,000 school, - Gives each family €70 monthly, - Provides 4G internet, - Gives laptops to students. The world needs more people like Sadio Mane!
@fadol230 @UtdForever7 @FabrizioRomano I don't think anyone on the board will have been telling anyone who they're looking to sign. It's all media and so called fans making up stories for clicks.
Bill Clayton retweeted
Hairs on the back of my neck. Absolutely incredible
Bill Clayton retweeted
Today is my birthday. I turned 40. But nobody knows it anymore, except my close family. Because I am socially isolated due to Long Covid for four years now. People simply forgot me. They forgot us.
Anil van der Zee © @AnilvanderZee
10K Followers 891 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Dan Wyke 🦠➡️�... @Dan_Wyke
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Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
ME/CFS News @MECFSNews
14K Followers 673 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
@richardvallee.bsky.s... @richardvallee
3K Followers 4K Following I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Healthcare. Science. We are actually in the pre-truth era. #MillionsMissing
Lizzy H @hopefullizzy
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John Peters @johnthejack
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Jo @cfs_jo
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All of them snollygos... @OnlyEnnui
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Dr Nicola Clague-Bake... @ClagueNjc36
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Long Covid Advocacy �... @LongCovidAdvoc
15K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #cripademia book club. 🛍️ https://t.co/8JlRWqy8Id
Alisontomyradioooo @arisonsned
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Flick Williams @flickhwilliams
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Jax 🎶 ⚘️🧶 �... @Jax31872570
26 Followers 90 Following mum, granny, mental health service survivor, living with ME/CFS, love coffee, playing the piano, detective fiction, my garden, collecting dragons, and knitting.
💚🤍💜Hoardosau... @coccinellanovem
22K Followers 10K Following No child has ever been born in the wrong body. Let kids be kids.
Zoe James @ZoeJames2024
724 Followers 3K Following I raised concerns to protect my daughter, and instead found myself shut out of the process entirely. That should concern anyone who believes in fairness
Mary Luis @marylusi726
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Claire @claireheatherd1
128 Followers 966 Following Holy Spirit filled Christian who's not ashamed to say it. In full faith for deliverance & healing from severe ME. Nothing is impossible with God. In Jesus Name
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252 Followers 451 Following ME and fibromyalgia sufferer for over 20 years-if you want to claim it doesn’t exist or all in my head you will be blocked😉
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Joanna @WTM1945933
46 Followers 252 Following 🇬🇧 Londoner | Eats like a local, travels like a pro, geeks out on all things tech 🍜✈️💻 #RejoinEU #GTTO
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miakhalia backup page @miakhalia223
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277 Followers 4K Following peace and love . unity is the key to prosperity together we can be greater
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Patrick #DisabilityRe... @PatrickPTS1
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SoeMac @SoeMac_
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Anil van der Zee © @AnilvanderZee
10K Followers 891 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
Janet Dafoe @JanetDafoe
17K Followers 223 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Tom Kindlon @TomKindlon
15K Followers 619 Following With ME 37 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Sten Helmfrid 🇺�... @StenHelmfrid
8K Followers 189 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
davidtuller @davidtuller1
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Dan Wyke 🦠➡️�... @Dan_Wyke
14K Followers 6K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
ME/CFS News @MECFSNews
14K Followers 673 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Dr Keith Geraghty @keithgeraghty
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Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
All of them snollygos... @OnlyEnnui
3K Followers 2K Following Ex philosopher, Ex Singer Song Writer Ex Friend & lover. #MEcfs activist #hEDS benzo withdrawal = hell. Expect swearing & sarcasm
Naomi Harvey “PhD W... @Naomi_D_Harvey
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Dr Nicola Clague-Bake... @ClagueNjc36
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Long Covid Advocacy �... @LongCovidAdvoc
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SCOTBALL 🏴... @scotball_
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