#MEAction Scotland @meactionscot
#MEAction Scotland focuses on campaigning and advocacy In Scotland as part of the charity MEAction UK. meaction.net/connect Scotland, United Kingdom Joined April 2017-
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We are excited to share the Severe ME Artists Project 2026 from #MEAction in recognition of Severe ME Day on August 8th. #SevereME #MyalgicEncephalomyelitis instagram.com/p/DZu4KevjCJu/
with ME. We were disappointed by the government’s response given by Baroness Merron, The Parliamentary Under-Secretary for Health and Social Care who offered nothing new for the very severely ill who have no NHS service.
Thanks to Baroness Scott of Needham Market for yesterday’s debate on severe ME and for speaking so eloquently about the plight of people with ME, We are grateful to Lord Evans of Rainow, Baroness Walmsley and Lord McCrea of Magherafelt and Cookstown for th bbc.co.uk/iplayer/episod…
@jamesmurray_ldn If you get an encouraging reply please email [email protected]. Thank you. #MyalgicEncephalomyelitis #VerySevereME
@jamesmurray_ldn Could your family and friends join you in tagging, messaging and sharing our call? Use our templates to send a message, we have one requesting a meeting and a short one for people who can't meet in person. Links to template and video are here: shorturl.at/I7Rwk.
Another heartbreaking image of someone with very severe ME. Please share our video, contact your MP to ask them to lobby @jamesmurray_ldn about the harm that people with very severe ME are suffering due to a lack of NHS care?
@jamesmurray_ldn If you get an encouraging reply please email [email protected]. Thank you. #MyalgicEncephalomyelitis #VerySevereME
@jamesmurray_ldn Could your family and friends join you in tagging, messaging and sharing our call? Use our templates to send a message, we have one requesting a meeting and a short one for people who can't meet in person. Links to template and video are here: shorturl.at/I7Rwk.
Please share these heartbreaking images and our video and contact your MP to ask them to lobby @jamesmurray_ldn about the harm that people with very severe ME are suffering due to a lack of NHS care?
@LongCovidAdvoc I'm joining the call for up-to-date scientific representation & meaningful patient engagement in Long Covid and ME. I'm proud to support the Open Letter to RCPsych, backed by 58 orgs & 1200 signatories. #HearOurVoices #RCPsychIC tinyurl.com/46enh82n
Please share the text and link below today to demonstrate support for @LongCovidAdvoc's recent open letter to the Royal College of Psychiatrists. Text to copy and paste👇🏼
@jamesmurray_ldn Ask your family and friends to join you. If you get an encouraging reply please email [email protected]. Thank you. ❤️ #MyalgicEncephalomyelitis #VerySevereME
@jamesmurray_ldn Use our templates to send a message, we have one requesting a meeting and a short one for people who can't meet in person shorturl.at/I7Rwk. Can you also share our images and video, or tag your MP and @jamesmurray_ldn?
We are grateful to the most severely ill people with ME who used their energy to share their heartbreaking images.
We asked you to contact your MP to ask them to lobby @jamesmurray_ldn Let us know if you have received a supportive answer, [email protected]. There is still time. Tag & lobby your MP & @jamesmurray_ldn More info: shorturl.at/I7Rwk #MyalgicEncephalomyelitis #VerySev
We signed this open letter, along with 57 orgs & 1200 individuals regarding the framing of Long Covid in the Royal College of Psychiatrists 2026 International Congress. longcovidadvoc.com/post/open-lett…
Those with very severe ME are suffering due to a lack of NHS care. They need your help. Can you share our images & video, tag & lobby your MP and James Murray? Ask family & friends to join you. Find out how shorturl.at/I7Rw #MyalgicEncephalomyelitis #VerySevereME
ill with ME. shorturl.at/I7Rwk Let’s make our voices heard! #MyalgicEncephalomyelitis #VerySevereME
Please sign the petition to 'Save Karen Gordon from Dying of Malnutrition and Dehydration' shorturl.at/6ggcA Watch the video and find out how to lobby your MP and James Murray to stop the harm, stop the deaths, start the service for the people who are the most severely
Please help Karen Gordon bravely took part in our video that lit up London for the very severely ill.
ME/CFS News @MECFSNews
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Tom Kindlon @TomKindlon
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Rivka @Rivkatweets
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Manitoba MECFS Suppor... @Manitoba_MECFS
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Amelia 🪐 @amelia_cute1lp6
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Ted Monroe @TedMonroe91
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Simon DeLang @SimonDelan34191
2 Followers 42 Following
ME/cvs Vereniging @MEcvsVereniging
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Kenneth Brawley @AmpedTo11
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Vania Terzopoulou @terzo86128
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Winksy @radiowinks
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Gillian Mitchell @Gillian52657828
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3 Followers 209 Following
Sarah @SarahMCockrell
3 Followers 35 Following Very Severe Myalgic Encephalomyelitis Sufferer 💙 | 🇿🇦 🏴 | Wife, daughter, sister, friend | Missing out on my life here on Earth | Christian ✝️
JacquelineRosalind @Qw8dg9vNL1zXR
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FarmerHoggit @SeanC_Robertson
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Ray Dehghan-Paz @healthjustice7
369 Followers 6K Following 🏳️⚧️ non-binary. Family sexual etc abuse survivor. Mold injury-severe #MECFS. MD: need clean housing. My Family refuses 2 help. Pic is Uncle-WW2 Purple Heart.
ME|FM Society of BC @mefmbc
593 Followers 568 Following We advocate for patients living with Myalgic Encephalomyelitis, Long-COVID and Fibromyalgia.
Dr Anjali Agarwal @Dranjaliphysio2
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#MEAction Network UK @MEActNetUK
7K Followers 580 Following #MEAction UK focuses on campaigning and advocacy in the UK a part of the charity MEAction UK.
Chris “Groggy” Cr... @tiredchris2
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Karen Howard 🇺🇦 @Kazz1908
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Harry @Harry1977837
194 Followers 266 Following
Ryan Extraterrestrial... @RyanE_T_
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Sandra @RestlessSands
25 Followers 63 Following
Melissa Challenor M.U... @urbanmel
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Long Covid Teacher @Jackk1372742
299 Followers 142 Following We don't want to drink contaminated water or eat bacteria-laden food; why do we want to breathe exhaust fumes, viruses, & chemicals? Let's clean the air!
Angie BIER @bier_angie
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Pwd Online Safety @pwdonlinesafety
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Rachel @rachelleese84
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ろんこびと @fatigued_people
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Arthur Seat @zeeofgee
395 Followers 5K Following Armchair Activist. Retweets are not an endorsement, nor any indicator of political affiliation.
Sunny♡(goro akechi ... @Himiyashi_VA
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ChronicLivingTherapy @ChronicLiving1
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Janet Dafoe @JanetDafoe
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Sten Helmfrid 🇺�... @StenHelmfrid
8K Followers 189 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Adam @ABrokenBattery
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davidtuller @davidtuller1
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Katy B @KatyBruce108
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19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
#MEAction Network @MEActNet
19K Followers 2K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Whitney Dafoe @DafoeWhitney
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Dr Keith Geraghty @keithgeraghty
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PwME 4 bioMEdical res... @ValeBodi
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Science for ME online... @s4me_info
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Open Medicine Foundat... @OpenMedF
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@richardvallee.bsky.s... @richardvallee
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NickyProctor @NickyProctor
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Publer @publer
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First Minister @ScotGovFM
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Jamie Hepburn MSP @jamiehepburn
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Wilhelmina Jenkins @minadjenkins
2K Followers 1K Following
#ThereForME @ThereForME_UK
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Dr Nicola Clague-Bake... @ClagueNjc36
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CM they/them ASD EDS ... @CM_7505
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David Torrance MSP @DavidHTorrance
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Richard Leonard @LabourRichard
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Edel Harris OBE (She/... @Edelharris
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KarenLesliePhysio @karenphysiocouk
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Billboards for LC/MEC... @LCMEBillboards
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NHS Fife @nhsfife
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Bill Clayton @clanman3
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577 Followers 148 Following Promoting evidence-based medical education on ME/CFS; raising awareness among medical students, medical educators and organizations. https://t.co/OSoi2hqVXV
chatwithmepodcast @chatwithmepod
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Astronomer Royal for ... @AstroRoyalScot
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Disability Rights UK @DisRightsUK
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Scope @scope
105K Followers 7K Following This page is no longer routinely monitored. If you need support, please visit our website. We’re Scope, creating equal futures with disabled people. Join us.
Debbie Clarke @debbiejourno
1K Followers 1K Following Health and Wellbeing features writer for @DC_Thomson. Views are my own. I can be contacted via DM or by email: [email protected]
Harry Leeming @HarryLeeming
5K Followers 892 Following Founder of @visible_health | #MECFS #LongCovid | Building for invisible illness
Jason Leitch @jasonleitch
86K Followers 2K Following Senior Fellow, Institute for Healthcare Improvment Former National Clinical Director, Scottish Government
Royal College of Phys... @RCPEdin
10K Followers 774 Following This account has been archived. Keep up to date with us through https://t.co/HqHIsrvhvu or our other channels: https://t.co/XEhX5HU2Xb
Kerri Baker @KerriBaker20
1K Followers 591 Following Acute Physician. Dean of Education & Training @RCPEdin. V seldom on X - find me on Bluesky. She/her. Views my own.
Kayleigh K O’Neill @KayleighFONeill
2K Followers 43 Following Green MSP for Edinburgh and Lothian's East. Shadow Cabinet Secretary for Health. Cat maw. Wheelie.
John Swinney @JohnSwinney
124K Followers 575 Following 🏴 First Minister of Scotland, @theSNP Leader, Promoted by John Swinney, Ericht Lane, Blairgowrie, PH10 6AL






